Section 2b – our structure

The Role of Trustees

An elected Board of Trustees have overall responsibility for the charity.

Local Governance

Some local responsibility is delegated by the Board of Trustees to the elected volunteer committee members of local branches. We have over 90 branches and groups run solely by volunteers providing support, fundraising, raising awareness and campaigning locally. The main difference between branches and groups is the structure of how they operate. Both are run by committed and passionate volunteers, whose aim and purpose is to do all they can to improve quality of life for people with MND.

Branches are run by a management committee. Our trustees delegate various powers via the Branch Charter, which the committee signs each year following their AGM. The Charter establishes what the Association expects in terms of legal requirements and good practice under charity law.

Groups are usually more informal. They are not required to have such a formal structure, however, they do sign a Group Charter which outlines what is expected of the group and what the group can expect from the wider Association. Some groups specialise in one particular area of our activities, such as a fundraising group, others involve themselves in all areas of our work, depending on their resources and capacity.

David Niven House

There are seven directorates which carry out different functions under the leadership of the Board of Trustees and the Chief Executive. They are:

  • Chief Executive’s Office
  • National Care Team
  • External Affairs Team
  • Engagement Team
  • Finance Team
  • Research Team
  • Fundraising Team

View a diagram of our organisational structure.


Now you have completed Section 2b, please move on to Section 2c – Our Income, or return to the induction homepage.

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