Information for volunteers

We are updating this page regularly with the latest COVID-19 guidelines. Be sure to check back frequently.

This page was last updated Thursday 7 July 2022.

Please see our main dedicated web hub on coronavirus and MND for advice, FAQs and links to the organisations providing the most up to date information.

Guidance to volunteers on face-to-face volunteering

We continue to consider that people with MND are extremely vulnerable to COVID-19, however, we also want to balance this against the individual wants and needs of people with MND and the benefits that meeting others has on quality of life.

In light of this, along with close consideration of government guidance and in consultation with our panel of clinical experts, our guidance on face to face volunteering is outlined below.

These guidelines emphasise our values of putting people with MND at the heart of what we do, of openness, respect, and collaboration. Our aim is that all people living with and affected by MND can receive support from the Association in a way that is comfortable and appropriate for them.

As a volunteer it is important that you feel comfortable and supported to carry out your volunteering activities in a safe environment.

Please take some time to read our guidance and check these web pages regularly as we will keep them up to date pending any changes in government or MND Association guidance.

Please do liaise with your Area Support Coordinator if you need guidance regarding the changes.

How to protect yourself and others from COVID-19

Non Invasive Ventilation (NIV)

Non Invasive ventilation is an aerosol generating procedure and increases the risk of transmission of Covid-19 to others if an individual is infected with the virus.  This is because NIV releases small airborne particles to the surrounding area.  The risks are increased further indoors.  We believe the guidance below is the best way of balancing the risks of transmission of Covid-19 with the need to ensure we are able to provide support to those using NIV an enable them to access our services.

Volunteering outdoors

Volunteering indoors in public venues

Volunteering in peoples homes

It is possible to meet with others, including those living with, and affected by MND in a private home.

All visits to people living with MND should be at their request, or via a third party acting on their behalf. We ask that you discuss the available support options with the person you are due to meet indoors and agree on the best option for them. This may include virtual or remote support or meeting outside.

If a person affected by MND specifically requests a meeting indoors, or at home, it is important you know how to manage the risk to yourself as a volunteer and to those you’re meeting. This can be done by using our support volunteer checklist and following our outlined ‘Safe Behaviours’.

Planning or attending a face-to-face meeting or event

We would ask that where a face-to-face meeting does take place, that MND Association recommended safe behaviours are followed.

If people using Non Invasive Ventilation are likely to need to attend, please request they carry out a lateral flow test beforehand. If a positive result is produced, we ask that they do not attend the meeting.

Please carry out a risk assessment for all events and meetings and share this with your Area Support Coordinator ahead of the event taking place.

What do I need to consider when selecting a venue for an indoor meeting or event? 

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Get in touch with MND Connect

MND Connect is available Monday to Friday between 9am – 5pm and 7pm – 10:30pm. Calls to this number are free from landlines and mobile phones within the UK and do not appear on itemised bills.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262