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Your local campaigning team

Our local campaigning team is made up of four Campaigns Managers who help our supporters to raise awareness of MND among decision makers and improve services for people with MND and their families.

They work to deliver our national campaigns and to campaign on local issues we have identified with branches, groups and colleagues, for example, access to a MND nurse.

The four Campaigns Managers cover a difference part of England, Wales and Northern Ireland. View a map of their patches here.

Helen Riley, Local Campaigns Co-ordinator East

“Hi I’m Helen and I’ve joined the Association from the Drowning Prevention charity, RLSS UK based in the West Midlands, and I moved back to London over the summer with my family. Having worked for national charities, housing associations and local government, my experience is in consulting with local people and organisations to improve the health and wellbeing of people living in those areas.  I’m really looking forward to getting to know the East region and working alongside you all.”

Julie (JC) Compton, Campaigns Manager (North)

“Hello, I’m JulieJC - campaigns manager and everyone knows me as JC.  I’ve been working for the Association for 10 years and it’s fantastic to be starting a new chapter in the North of England (North West, the North East and Yorkshire and Humber). I know some of you well but look forward to getting to know all of you much better!”



Rae Martin-Smith, Campaigns Manager (South)Rae - campaigns manager

“I’m Rae and I’ve come to the Association from Leonard Cheshire Disability, where I supported people with disabilities to improve housing and get the adaptations they need. My region covers the entire south of England from Cornwall to Kent. I absolutely love campaigning, so much so that I volunteer as a campaigner in my spare time!”

Ian Chandler, Local Campaigns Co-ordinator (West)

  “I’m Ian and I live in Wales with my wife and children. I cover the West Midlands, Merseyside & Cheshire, Northern Ireland, the Isle of Man, and of course Wales. For 30 years I’ve supported charities around the world with their campaigning and I am passionate about empowering people to make real change happen”.





Making our voice louder

Contact us for:

  • Information about how to get involved in our campaigns as a volunteer
  • Issues with local services (NHS, social care, housing etc) which you think might be raised or resolved through campaigning, and advice on action to take
  • Advice or support on taking our national campaigns forward locally
  • Advice on meetings with politicians such as MPs, assembly members or councillors, and other decision makers

How to contact us

Email: helen.riley@mndassociation.org
Phone: 07733 893108

Email: julie.compton@mndassociation.org  
Phone: 0115 920 4507

Email: rachael.martinsmith@mndassociation.org
Phone: 07702 336554

Email: ian.chandler@mndassociation.org
Phone: 07702 336552

To check which campaigns manager covers your branch or group, click here.

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