Carers – how to support

Caring for someone with MND is physically and emotionally challenging. The Association recognises and values the vital role played by families and unpaid carers and is committed to ensuring that they have access to a network of support and high quality information.

Branches and groups have a key part to play in this commitment by including the needs of carers as part of what they offer locally. A warm welcome, friendship and an opportunity to meet others in the local community who understand their situation are so important.

Branches and groups can do this through offering and promoting:

• regular meetings, particularly carers support meetings

• support by funding, such as respite care and complimentary therapy (refer to financial support guidelines for further information)

• the Association’s Carers Guide for carers and the services of MND Connect and their local Area Support Coordinator (ASC)

• organising social events for Carers

• carer focused news, information and articles in your newsletter, website and at open meetings

• information about local carers groups and other carers support organisations in the area.

If you would like support or advice on how to develop any of the ideas listed above, do contact your Area Support Coordinator.


Support for carers

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262