Your Volunteer Role
The following information, forms and resources may be of use to you in your role.
If there are any additional resources that you would find useful to be able to access on this page, please let us know.
Contact the Volunteering Team on volunteering@mndassociation.org or 01604 611681.
All Roles
Support Volunteer
Association Visitor
Association Visitors provide emotional and some practical support to people with MND and their families.
Association Visitor role profile (Welsh)
Referral Form - Online version
Referral Form - Downloadable PDF
Referral - additional information
Publications list
Publications order form
Introducing 'Understanding my needs' - ideas to help encourage people to open conversations.
Understanding my needs - a personal record to help you support me with motor neurone disease
Data collection and recording
Guidance
Contact form (first contact)
Contact form (subsequent contacts)
Association Visitor Coordinator
Association Visitor Coordinators build a team of AVs in their area and are in regular contact with both staff and volunteers.
Care Service Navigator
Care Services Navigators will support people affected by MND, their families and carers to navigate health and social care services.
Care Service Navigator Role Profile
Referral form - Online version
Referral form - Downloadable PDF
Publications order form
Carers Champion
Carers' Champions are volunteers helping to provide information about support for carers and past carers of people with MND in their local area.
Evening Helpline Volunteer
Evening Helpline Volunteers provide callers with information and support on all aspects of MND.
Support Event Helper
Support Event Helpers help at coffee mornings, afternoon teas, support meetings or drop-ins for people living with MND.
Support Event Helper role profile
Guidance on branch and group meetings (including support meetings)
Support Meeting Coordinator / Facilitator
Support Meeting Coordinators (sometimes called Facilitators) organise regular coffee mornings, afternoon teas, support meetings or drop-ins for people living with MND, their families and carers.
Support Meeting Coordinator role profile (Welsh)
Guidance on branch and group meetings (including support meetings)
Voice Banking Volunteer
Voice Banking Volunteers help people with MND with the logistics of banking their voice.
Regional / National Volunteer
Trustees
Trustees are responsible for directing the affairs of the Association, ensuring that it is solvent, well run, that it complies with current legislation, and that it delivers its charitable outcomes for the benefit of those people for whom it exists.