MND Care Centre Sheffield
Many people within the South Yorkshire area living with MND will have been diagnosed at the Hallamshire hospital and will attend clinic at the Sheffield MND Centre.
The centre has it’s own website http://sheffieldmndcentre.group.ac.uk
The Sheffield Institute for Translational Neuroscience (SITraN) is a world renowned research facility opposite the Hallamshire Hospital in Sheffield. It brings together scientists and medical specialists from around the globe who are dedicated to finding the causes and treatments for MND, as well as other neurodegenerative conditions such as Parkinson’s and Alzheimer’s disease.
The key aim of their research is to identify what leads to the degeneration of neurones at the root of MND. The research teams focus on experimental work in the laboratory, which could then be translated into effective therapies for patients in the clinic. Each December doctors and scientists from SITraN attend the International Symposium on MND organised by the MND Association. At our AGM the following February, we invite someone from SITraN to talk about the event.
For more information on research at SITraN please visit: www.sheffield.ac.uk/sitran
The Sheffield Motor Neurone Disorders Research Advisory Group. SMND RAG
The Sheffield Motor Neurone Disorders Research Advisory Group SMND RAG, was established in 2009 to bring together patients and carers from the local area who wish to help researchers understand patient & carer priorities in research.
The group has face to face meetings at SITraN four times a year, in addition to monthly email updates. Associate members of SMND RAG do not need to attend the face to face meetings.
It aims :
- To enable the patient and carers perspectives to be heard, which might otherwise be overlooked
- To provide knowledge for the researchers from the individual’s experience and contribution
- To identify and prioritise research topics that are important to patients
- To improve recruitment to research studies
- To comment on study Patient Information Sheets
- To help write lay summaries for research proposals and Research Ethics Committees
If you are interested in becoming a member of SMND RAG and require further information please contact:
Annette Taylor: 0114 222 2289 firstname.lastname@example.org
Complementary therapy and emotional support for people affected by MND
Cavendish Care Centre Service and the MND Association
“I hesitated before I visited the Cavendish… but everyone was so warm and friendly, before we knew it we were sitting down with a cup of tea “.
The Cavendish Centre is a long established charitable organisation in Sheffield that has been offering free supportive care to people living with cancer, for many years. The South Yorkshire Branch of the MND Association works in partnership with Cavendish Cancer Care. The aim is to offer this same form of supportive care, including complementary therapies, to patients with MND, their main carer and children if appropriate.
At our Sheffield Open meeting therapists from the Cavendish came to demonstrate some of the services;
Delphine explained that the centre provided a non- clinical atmosphere for families affected by MND to come and talk in confidence about their worries and fears. She explained that often patients and carers protect each other and so may not be able to talk honestly about their feelings to each other.
The centre encourages self referral and the service is flexible so people may attend at any stage of the disease. Though the sessions are time limited, they can also be extended if necessary.
As well as counselling she explained about therapies such as reflexology, acupuncture, hypnotherapy and relaxation. Any of these can help with things like anxiety, decision making and sleep problems.
Julie who is living with MND and is a wheelchair user said she was a regular client of the Cavendish and found shiatsu invaluable.
“Different weeks it’s about different things” she said “The worse I feel the more I need it”. Julie also said she felt it “realigned her body”.
The sessions are generally carried out at the centre in Wilkinson Street but if you live within a ten mile radius of the Cavendish, the therapists can often offer a service in your own home. Many people have found them a real benefit in the past, whether they’ve just had a hand or foot massage or the chance to talk to a professional and relax in a pleasant, calming one to one situation.
Contact Olga Bannister 0114 262 0237 email@example.com
What are complementary therapies and can I get help with complementary therapies at other locations?
People have found that complementary therapies have been useful in helping to support them during periods of poor health. Complementary Therapies aim to address symptoms of illness and disease and their effects on the physical and emotional aspects of life, through the complete and balanced treatment of the person as a whole. Some of the complementary therapies involve hands on treatments such as aromatherapy massage and some involve talking, listening and counselling.
For people with Motor Neurone Disease these therapies are sometimes offered at a day hospice but the South Yorkshire branch also helps to fund individual courses of complementary therapy for families affected by MND. Contact Olga Bannister. Details above.
How can I access Complementary Therapies at the Cavendish?
If you, or the person caring for you, wish to receive support and complementary therapy services from the staff at the Cavendish Care Centre or would like further information, please contact them directly and they will discuss all options fully with you. You do not need to be referred.
The service runs Monday to Friday Tel:0114 2784600
What happens when my treatments finish?
Olga Bannister, Branch Contact would very much welcome your feedback on complementary therapies generally, and is happy to help co ordinate a further session of treatments if required.
firstname.lastname@example.org 0114 2620237
Clifford House is a new facility in Sheffield. It is part of St Lukes hospice and will be open to people living with an illness which has no cure. It is on Ecclesall Road South. People with MND and their carers are very welcome to make use of this beautiful house and resources.
They are having open days on 12th, 13th and 14th September, 10.00 – 16.00. If you are free, then do go and have a look and what they are offering. They are happy to see people from further afield, and it is very convenient for people from N Derbyshire.
There’s a range of activities to choose from, advice and information sessions and groups to be part of. More than anything, there will be support from others living with illness, and from professionals and volunteers who can help. Relaxation, wellbeing, practical advice and above all, fun are all on offer at Clifford House.
If people just want to go along for a coffee and a chat that is also an option.