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All-Party Group on MND elects officers

The All-Party Parliamentary Group (APPG) on MND held its AGM in Parliament on Wednesday 12 July and elected its officers for the coming year.

APPG for MND elected officers

(left to-right) Chris Evans MP, Justin Madders MP, Madeleine Moon MP, Cat Smith MP, Rosie Duffield MP, Jo Platt MP

The elected officers are:

Chair:
Madeleine Moon MP (Bridgend)

Vice Chairs:
Paul Blomfield MP (Sheffield Central)
Mary Robinson MP (Cheadle)

Secretary:
Chris Evans MP (Islwyn)

The MND Association was appointed to provide the secretariat to the Group.

Following the AGM Susie Rabin, Head of Policy and Campaigns, talked to MPs about our new report MND Costs: Evaluating the financial impact of motor neurone disease.  Susie said:

“It was great to have the opportunity to talk to MPs about the extra costs of living with MND and the importance of access to financial support for people with the disease and their families.  There was commitment from around the table to help us campaign for better access for everyone affected by MND”.

The Group also discussed its inquiry into access to Personal Independence Payment (PIP) for people with MND.  The report from the inquiry will be launched at a joint reception between the APPG and the MND Association in October.

You can write to your MP about the financial impact of MND and invite them to attend the reception via our online action.

For further information please contact Alison Railton, Public Affairs Manager on alison.railton@mndassociation.org.

 

13/07/2017

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