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Home News and Events Latest News Raising awareness of Champion The Charter

Raising awareness of Champion The Charter

Last week (4-6 July 2017), campaign staff and volunteers from the Association joined together to raise awareness of MND and promote Champion The Charter with councillors from across the UK.

Attendees at Champion The Charter event

Thank you to Campaigns Contact volunteers Cris Hoskin, Lorraine Sheahan, and Association member Rob Owen who is living with MND, for attending the Local Government Association Conference and Exhibition in Birmingham.

See a roundup of the event here.

Decision makers and politicians are increasingly paying more attention to people with lived experience, and so we are very grateful to Cris, Lorraine and Rob who all have a personal connection to MND, for attending and sharing their stories with councillors.

Cris said,

Attending the conference was a great experience. All of the conversations with councillors were very positive. Mostly, they seemed really interested in what we had to say. It was also really interesting to have conversations with councillors from councils that have adopted the Charter.”

If you would like to get your council on board with Champion The Charter, you don’t have to attend a large conference or event to speak to your local councillor – all you have to do is send them an email and arrange to meet with them in your local area.

To find out how to get involved, please visit

Northampton Borough Council

The latest council to adopt the MND Charter is Northampton Borough Council. The council officially adopted the Charter on 10 July at full council meeting.  The motion to adopt the Charter was tabled by Councillor Anna King and received unanimous cross-party support.

The Association’s Regional Care Development Advisor Scott Maloney, said:

“I’m delighted that Northampton Borough Council has adopted the MND Charter. The MND Association was established in Northamptonshire in 1979 by a group of volunteers who wanted to support people affected by this devastating disease, and volunteers still play a crucial role in our work today. It’s great to see our hometown adopt the Charter and commit to playing its part in raising awareness and delivering services for people living with MND and their carers locally.”

Councillor Anna King, cabinet member for community safety and engagement, said:

“We want everyone who calls Northampton home to have access to quality services that allow them to make the most of life. Motor Neurone Disease progresses incredibly quickly so it’s important that the right support is available to people when they are diagnosed.”

Northampton is the 49th council to adopt the Charter. Which council will be number 50?



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