4 October 2021 Campaigns
Last year, the MND Association launched the Act to Adapt campaign to push for more accessible homes and a fairer and faster system for delivering home adaptations for people with MND.
One year on from the launch of the campaign, many people with MND are still unable to access the support they need and deserve because councils are failing to provide it. Awareness of the problem has been raised, but throughout the country, many councils are yet to act to provide solutions.
In May, the MND Association sent out Freedom of Information (FOI) requests to all local councils in England. These FOI requests posed questions relating to home adaptations policies and overall levels of support provided. The responses showed huge variation across the country, with many councils continuing to fail people living with MND.
The picture provided by this data confirms what our supporters and other stakeholders have been telling us for some time: support for adaptations is simply inadequate.
In response to this, on Thursday 30 September, the Association launched the next phase of Act to Adapt. We’re calling on councils in England to improve the support they provide by:
- Introducing a fast-track process for people with MND
- Removing financial assessments for Disabled Facilities Grants for people with MND
- Maintaining a register of accessible homes for people to move into
Everyone with MND deserves to live in a safe and accessible home, without long delays and high costs.
Urge your local council to support Act to Adapt and act now for people with MND and other rapidly progressing diseases.