Care pathways and clinical guidelines

This page gives examples of best practice documents to help you develop your services for people with MND.

If you have pathways or guidelines you would like to share with others please submit it to education@mndassociation.org

Allied Health Professionals’ competency framework for progressive neurological conditions
Covering the responsibilities of allied health professionals working with patients with progressive neurological conditions. With sections that focus specifically on Parkinson’s disease, multiple sclerosis and motor neurone disease.

Care pathway for people living with MND in Dorset
Date: February 2018
Author: Multi Disciplinary Pan Dorset MND Group

Care pathway for patients with motor neurone disease
Date: 2018
Author: Middlesbrough MND Care Centre

Greater Manchester MND Care Model Pathway
Date: January 2020
Author: Manchester MND Care Centre

MND Management Pathway
Date: 2019
Author: Ipswich and East Suffolk MND Clinic

Management Of MND
Date: May 2019
Author: Norfolk MND Care and Research Network

NICE guideline 42: MND assessment and management
Date: 2016
Author: NICE (National Institute for Health and Care Excellence)

Gastrostomy Management In MND
Date: May 2019
Author: Norfolk MND Care and Research Network

Leeds Motor Neurone Disease PEG Pathway
Date: March 2015
Author: Leeds Centre for Neurosciences

MND Respiratory Pathway
Date: April 2015
Author: MND Association

Respiratory Management Of Patients With MND
Date: May 2019
Author: Norfolk MND Care and Research Network

Withdrawal of Assisted Ventilation at the Request of a Patient with Motor Neurone Disease
Date: November 2015
Published by: Association for Palliative Medicine of Great Britain and Northern Ireland

Respiratory Care Pathway, NIV
Date: June 2020
Author: Multi Disciplinary Pan Dorset MND Group

AAC Pathway for MND: full guidance
Date: July 2015
Author: MND Association

End Of Life Care Guidelines
Date: 2018
Author: Multi Disciplinary Pan Dorset MND Group