Recommended reading for GPs
Motor neurone disease (MND) is a progressive and ultimately fatal disease that results in degeneration of the motor neurones, or nerves, in the brain and spinal cord.
GPs and others in the primary care team can make a great difference to the quality of life of people with MND, with timely care, support and symptom management.
NICE guideline on MND
For guidance on best practice in MND care, see NICE guidance 42:
Below is a selection of other resources that may be useful for GPs.
This is not an exhaustive list and is intended for guidance. Please contact us if you have any suggestions for this section.
Miller, R.G.et al. Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Drug, nutritional and respiratory therapies (an evidence based review). Neurology 2009. Vol 73. 1218-1226.
Correction to above article printed in Neurology Vol 73 (24) Dec 15 2009 2134 and Neurology Vol 74 (9) Mar 2010 781.
Miller, R.G.et al. Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management and cognitive/behavioural impairment (an evidence based review). Neurology 2009. Vol 73. 1227-1233.
Turner-Stokes, L et al. From diagnosis to death: exploring the interface between neurology, rehabilitation and palliative care in managing people with long-term neurological conditions. Clinical Medicine. 2007. Vol 7 No 2 129-136.
Talbot K et al. Motor neurone disease: a practice manual. Oxford University Press 2010 (Book).
Talbot K et al. Motor neurone disease:the facts. Oxford University Press 2008 (Book).
Kaub-Wittemer, D et al. Quality of life and psychosocial issues in ventilated patients with amyotrophic
lateral sclerosis and their caregivers. Journal of Pain and Symptom Management. 2003. Vol 26. 890-896.
Atkins, L. et al. Correlates of distress in caregivers of people with motor neurone disease.
British Psychological Society, proceedings. 2002. Vol 10. 53
Lee, J.N. et al. Quality of life issues in motor neurone disease: the development and validation of a coping strategies questionnaire, the MND Coping Scale. Journal of the Neurological Sciences. 2001. Vol 191. 79-85.
King's MND Care and Research Centre. Non-invasive positive pressure ventilation - guidelines.
Bourke, Stephen. C. et al. Effects of non invasive ventilation on survival and quality of life in patients with
amyotrophic lateral sclerosis: a randomised controlled trial. Lancet Neurology. 2006. Vol 5 (2). 140-147.