End of life care in MND

Motor neurone disease (MND) is a progressive and terminal disease that attacks the motor neurones, or nerves, in the brain and spinal cord.

The most common cause of death in MND is respiratory failure, often with additional chest infection. It is very important to reassure people with MND and carers that death from choking is exceptional.

For some people with MND, death can be very sudden, before an obvious end stage is reached. Others experience a longer final stage, which can last many weeks. For most people with MND, death will be peaceful.

If it is thought the person is approaching end of life, care plans should be reviewed so that appropriate care can be given.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262