Planning ahead for end of life

Motor neurone disease (MND) is a progressive and terminal disease that attacks the motor neurones, or nerves, in the brain and spinal cord.

People with MND should be encouraged to talk through options for their care and preferences for end of life with their GP or an appropriate member of their specialist team, before the need is urgent or before they find it too difficult or tiring to communicate.

Having time to think things through and knowing that wishes have been recorded in an advance care plan gives many people peace of mind.

All professionals involved in the care of the person with MND should be aware of any decisions that have been made and any changes made to these.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262