Thank you all so much for your attendance and participation at the 2024 MND Annual Network Day.
It was fantastic to see the interaction and hear the conversations and connections being made in the room.
Date: Tuesday 12 November 2024
Venue: Level 3 Bramber House, University of Sussex.
Presentations
- Equipment and adaptations: patient choice and decision making - Fiona Eldridge
- Research update - Dr Andrew Barritt
- MND SMART - Dan Hansen
- Expiratory Muscle Strength Training with people with MND - Melanie Rowe
- MND Care and Research Network update: Planning for 2024-2028 - Rachel Thomson
- Withdrawal of ventilation - Dr Rishma Pau
- Support for children and young people affected by MND - Laura Willix
Follow up:
We really valued your input on the day and hope we can continue to collaborate in the year ahead, below are two opportunities we have on offer:
- Express an interest in joining a professions specific Sussex MND special interest group by completing a short form.
- Working groups: If you’re interested in joining any of the working groups - secretions, nutrition or psychological care, please get in touch with Rachel Thomson.
Save the date:
South East MND Network study day 29/04/2025 - Horsham, West Sussex. Further details coming soon.
Children and young people:
If you know a child or young person aged up to 25 who is living with or affected by MND, you can access a range of extensive support here for parents, guardians, professionals and children.