Our Association webinars run throughout the year – to bring you thought provoking content on a range of practice areas presented by subject experts.
You have the chance to ask questions or discuss what you have heard. They are designed to fit within a working day, lasting between 60 and 90 minutes.
The aims and objectives for each event are set out clearly so you should find something that meets your needs and grabs your interest.
If you have suggestions for future webinars subjects for us to consider please contact us at firstname.lastname@example.org
This webinar, presented by Sara Wordingham-Baker, Sean Headon, Rachel Milne, Stephanie Mansell and Alison Armstrong, explored processes, procedures and lessons learned in respiratory care during COVID.
This webinar, hosted by Dr Emily Mayberry, explores how all members of the MND multidisciplinary team can use psychological support principles to improve care and support.
This webinar, presented by Jennifer Benson, Independent Speech and Language Therapist, aims to support health and social care professionals - with a particular focus on SLTs - who may be new to working with MND to be prepared for their first few sessions with a person with MND and their family.
This webinar recording has been split into four parts:
An introduction to Kennedy’s Disease
Professor Pietro Fratta introduces the history and genetics of Kennedy’s Disease, he explores the clinical features of the disease and introduces the specialist clinic at the National Hospital for Neurology and Neurosurgery, which sees patients from across the UK.
The Kennedy’s Disease Clinic and treatment options
Dr Dipa Jayaseelan provides an overview of the extra neuromuscular manifestations of Kennedy’s Disease which are important when understanding the difference between it and MND. She also explains how patients are managed at the clinic and the current treatment options available to them.
Bulbar & Respiratory features of Kennedy’s Disease
Luca Zampedri, Clinical Research nurse at the Kennedy’s Disease clinic, explores the extent and frequency of bulbar symptoms in Kennedy’s Disease and provides guidelines to managing speech, swallow and respiratory problems for this group of patients.
Physiotherapy approaches to supporting people with Kennedy’s Disease (also referred to as Spinal-bulbar muscular atrophy (SBMA))
Dr Gita Ramdharry focuses on the use of physiotherapy to support people living with Kennedy’s Disease. She covers balance and explores toleration of different types of exercise amongst patients in this group. She concludes with a case study to demonstrate clinical reasoning.
This webinar, hosted by Jenny White and Lucy Heaps from Garden House Hospice Care explores the role of the hospice, in the care of people living with MND and their carers.
Presented by Alison Lovett - Healthcare Manager at Oxford Health NHS Foundation Trust.
Presented by Professor Martin Turner, Professor of Clinical Neurology and Neuroscience at Oxford University and Consultant Neurologist to the John Radcliffe Hospital, Oxford.
Presented by Rachel Milne, Senior NIV Respiratory Physiotherapist at Bristol Royal Infirmary.
Presented by Kerry Connor, Social Worker, Best Interests Assessor and Team Manager at Keech Hospice and Diane Aldridge, Hospital Neuro Social Worker and Best Interests Assessor at Salford Royal Foundation Trust.
This session, delivered by Sunday Times bestselling author Dr Kathryn Mannix, enabled attendees to explore ways to approach honest conversations about end of life care with people with MND and their families, carers.
Presented by Ema Swingwood, Respiratory Pathway Lead Physiotherapist and Chair of the ACPRC.
Presented by Richard Cave, MND SLT Project Manager at the MND Association.
Presented by Melanie Worthington, Service Development Manager at the MND Association, who lost her husband to MND.
Presented by Dr Malabika Ghosh – Consulting Specialist, Lancashire Teaching Hospitals NHS Foundation Trust.
Presented by Dr Sian Hocking and Dr Emily Mayberry, this recorded webinar will give you a range of methods to support your own wellbeing. We have included a range of practice models for you to do as an individual or in pairs/teams which can be useful when dealing with pressures and being more compassionate with yourself.
This session featured Alison Armstrong, Nurse Consultant – Long Term Ventilation at Newcastle upon Tyne NHS Foundation Trust, answering questions about ventilation in MND.
This session featured Dr Mark Jayes, Research Fellow in Communication Disability, Manchester Metropolitan University, introducing the MCAST to support mental capacity assessments.
This pre-recorded session featured Pauline Callagher, MND Care Centre Co-ordinator at Preston MND Care and Research Centre, interviewing a selection of MND patients sharing their perspectives and experiences.
This session featured Richard Cave, MND SLT Project Manager at the MND Association, answering questions about Relate, a new app from Google.
This webinar, presented by Pauline Callagher, Care Centre Co-ordinator at Preston MND Care and Research Centre, explored the range of reactions of people experience following a diagnosis of MND.