Coping And Living well with MND (CALM) study

Evaluating the usability, acceptability and engagement of the CALM (Coping And Living well with MND) intervention.

There is an urgent need to develop more psychological interventions to support the psychological needs of people with MND and the overall aim of this PhD project is to develop and evaluate a psychological intervention to support people with MND.

Researchers at the University of Southampton have made a website to help people with MND and family members deal with the emotional impact of MND (e.g. feeling worried, sad, angry, hopeless, or overwhelmed). The website aims to help people to find ways to cope with these emotions and feel a little happier, calmer and more positive.

This research study will ask people with MND and their family members for feedback on the early drafts of this website. We will then make changes to the website so that it is as helpful and easy to use as possible.

We are interested in talking to people who may be struggling with difficult thoughts and feelings. We are also interested in talking to people who are doing okay emotionally right now.

What does taking part involve?

Phase 2: For this study you will be given the link to website that has been built to help people deal with the emotional impact of MND. You will need a tablet or computer to access this website. After 4-6 weeks of using the website, we would like to interview you about your thoughts and experience of using the website.

The interviews can be done by phone, video call or email, based on your preferred way of communicating. You will also receive a £10 Amazon voucher for taking part in the study.

Study location

UK-wide

Who can take part?

People with MND and family members, who must be:
• 18 years of age or over,
• fluent in English,
• Caregiver participants must be currently caring for someone with MND.

How can I take part?

To take part in this study, please contact the researcher below.

Contact

If you are interested in taking part or would like more information about the study, please contact Cathryn Pinto, PhD researcher at the University of Southampton (Email: C.L.pinto@soton.ac.uk) Telephone: 023 8059 6652).

Funding

Motor Neurone Disease Association

Expiry date: 31 May 2021

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262