Diagnosis experience in MND

Exploring experiences of being told the diagnosis of MND

This study aims to look at the way people with MND hear their diagnosis, in particular looking at the way the diagnosis is told to people, the information they are given and if the process is in line with the Guidance produced by the National Institute for Health and Care Excellence (NICE). It also explores the views of family/caregivers of people diagnosed with MND.

What does taking part involve?

You will be asked to complete a questionnaire asking about the experience of being told / giving the diagnosis of MND. You can access the questionnaire by using the buttons below.

Study location

You can take part in this study regardless of your location.

Who can take part?

• People diagnosed with MND
• Family or caregivers of people with MND


For more information, or to request a paper copy of the questionnaire, please contact Prof Mary O’Brien (01695 650918).

Expiry date: N/A

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262