Experiences of emotional distress in people with MND

What does taking part involve?

If people with MND or carers decide to take part in the study, they will be invited to participate in two confidential interviews about their experiences of emotional distress, including their
support systems and specific times of difficulty. Participants will be asked for  their opinions on the current measures of emotional distress in MND by asking them to give feedback on some currently used questionnaires.

The interviews can be held face-to-face at a location chosen by the participant (if local to Sheffield), by video or phone call, or by writing (e.g. email), depending on their preference.

It is estimated that the interviews will last 30-60 minutes each.
With permission, the interviews will be audio-recorded if held face-to-face or via telephone or video-recorded if held online. Cameras can be switched off on video calls if participants wish to do so.

Participants can choose not to answer any question that they do not want to. The interviews will go at the participant’s pace and interviews can be stopped or paused at any point.

Any travel expenses will be reimbursed and participants will receive a £10 voucher per interview for their time.

Study location

UK-wide