A study of biomarkers of cognition and behaviour using physiological and digital Technologies: the living lab protocol

Developing new technologies to help people with long-term diseases live in their homes for longer

People living with MND can often find it difficult to attend hospital appointments. This study is investigating the use of remote monitoring to enable lots of measurements to be taken easily from home, which could potentially replace these burdensome hospital visits. Imperial College London have created an artificial apartment, called the Living Lab. The living lab is installed with lots of new technologies to monitor people in their home while maintaining their privacy. The study will involve wearing some new smart watches and a device to measure your brain activity while you complete some simple tasks such as lying-in bed, making toast and cups of tea. It will also involve you completing a few questionnaires about health and some cognitive tasks. The implications for this study for people with MND will mean the development of new technologies that can be used to monitor health in the home. There is the added benefit that we will be able to develop more sensitive measures of health/disease progression, cognition and behaviour that will inform us if new treatments are effective for MND.

What does taking part involve?

The study will involve one 2.5 hour visit to the Sir Michael Uren Building at Imperial College’s White City campus. You will be asked to complete a pen and pencil standard cognitive assessment. You will be fitted with a couple of smart watches to track your arm movements during the study. You will then complete a few smart blood pressure readings while lying down and standing. Next you will complete a short physical performance battery, which involves a short 4 metre walk, siting and standing from a chair and simple test of your balance. You will then make some toast and a couple of cups of tea in the living lab kitchen. Finally, there are a few cognitive tasks that are completed on a computer and some questionnaires about your health and medications.

You would not need to complete all the tasks if you did not or could not complete them. You are also free to stop the study at any time.

Study location

London (Imperial College London White City Campus)

Recruitment is open UK-wide.

Who can take part?

People living with MND and older adults (65 years old+):

• aged 16+
• Have the ability to give informed consent
• Have sufficient English to allow completion of the assessments

How do I take part?

For further information about the study and details of how to take part, please contact Dr Mark Crook-Rumsey at m.crook-rumsey@imperial.ac.uk  or call on 07522 383448.

Funding

United Kingdom Dementia Research Institute

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262