MND Neck Collar Survey

Developing a bespoke neck collar for people living with MND

Muscle weakness is one of the key features of MND and head drop can result from weakness in the neck, shoulder girdle and long back extensor muscles. This can result in the use of head supports, such as neck collars, to help support the person living with MND. The aim of this study is to develop a bespoke neck collar with embedded sensors for patients with motor neurone disease, using 3D scanning and 3D printing. As part of this project, the research team hope’s to better understand how people living with MND experience using neck collars.

What does taking part involve?

Participants will be asked to fill out a survey on experiences with neck collars and their view on key features of collars (what’s good currently, missing). The survey should only take 5 minutes, and responses are completely anonymous.

Study location


You can take part in the study simply by clicking the following button and using the survey code '43 67 74':

Who can take part?

• People Living with MND
• Aged 18 - 85 years
• Suffering from neck weakness due to MND
• Use of a collar to treat neck weakness

How can I take part?

To take part, please use the orange button 'take part in this study' on this page and use the code:

Survey code: ‘43 67 74’


For any queries and more information, please email the study researcher,  Sam Spears, at