Neuro Digital: From Attitudes to Strategies

Investigating attitudes towards remote and digital care 

Since the start of the COVID-19 pandemic, there has been an increase in the use of digital technology to support the care of people living with neurological conditions, such as MND. However, there is very little information about how people with MND, and their carers, experience and use this digital health technology. The study will investigate whether those with the disease and their carers experience any reluctance or difficulties using digital health technology and identify ways in which the technology could be improved. It is hoped that the results will increase understanding of the issues associated with using digital health technology and could help to develop different ways to encourage it's use for MND.

What does taking part involve?

Participants can take part in either an interview, or a focus group with a researcher and other people with MND and their carers. The interview will take around 30- 45 minutes, the focus group will take around 60 minutes. Interviews and focus groups can be carried out over the phone or online (via Zoom or Teams). All participants should only take part in one interview or focus group during the study.

Before the interview or focus group, participants will be asked to complete a short questionnaire so the researchers can find out more information on the person with MND and the participants experience and use of digital health technology.

In the interview, participants will be asked questions on their experience of using digital health technology, any issues or difficulties they have with using it, their opinion on advantages and disadvantages of it and how they think it could be improved.

Study location

England-wide

 

Who can take part?

• People with MND, carers of someone with MND and Healthcare Professionals working with people with MND.
• Residents in England
• Aged 18+

How can I take part?

Anyone who is interested in taking part or who would like more information can contact the projects lead researcher , Dr John Spreadbury, on jhs101@soton.ac.uk or by calling 07876818404.

Funding

This project is funded by the NIHR Applied Research Collaboration (ARC) Wessex.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262