Remote breathing management

Validation of a new, hand-held device in the role of the management of breathing failure with MND

This is currently a pilot study to test whether the device is effective. If successful it could allow patients to reduce their hospital attendances when they are well but allow their doctor to identify when they are deteriorating, and when they should attend hospital to begin treatment with Non-Invasive Ventilation (NIV) to support their breathing. NIV is known to improve quality and duration of life for people with MND.

What does taking part involve?

All participants are initially invited to fill out a questionnaire. Some of the participants will then be asked to take part in the testing of the device. This will involve breathing into a portable, hand-held monitoring device daily at home for up to 12 months.

Throughout the study, you will also be asked to fill out a questionnaires and diaries about your symptoms. You will need to commute to the Royal Papworth Hospital a few times a year.

Study location

Royal Papworth Hospital, Cambridge

Who can take part?

People living with MND

How do I take part?

If you would like to take part, please speak to your neurologist to refer you to the Royal Papworth Hospital.

Main contact

For more information, please contact Jennifer Gray (01223 639717) or Adama Fofana (01223 639692).

Expiry date: N/A

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262