Stigma and MND

Does perceived stigma influence psychological distress in people with MND?

This study aims to find out if there is a relationship between levels of stigma and levels of psychological distress experienced by individuals with a diagnosis of motor neurone disease (MND) also known as amyotrophic lateral sclerosis (ALS) and Lou Gehrig disease.  The study also aims to find out the strength of this relationship compared to other important factors such as symptom severity and social support.

What does taking part involve?

You will be asked to complete an online survey involving questionnaires which will measure levels of stigma, levels of psychological distress, social support and symptom severity.

Study location

You can take part in this study regardless of your location.

Who can take part?

• People diagnosed with MND


Contact details can be found in the Participant Information Sheet after accessing the survey.

Expiry date: 14 April 2019

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262