Practical management of cognitive symptoms in MND (MiND Toolkit)

This project aims to develop a new toolkit to help patients and their carers to deal with behavioural and cognitive symptoms, including general loss of interest and empathy

Prof Eneida Mioshi

Lead Investigator: Prof Eneida Mioshi

Lead Institution: University of East Anglia

MND Association Funding: £300,697*

Funding dates: May 2017 - December 2022

* Supported by the Stanley Grundy Foundation, the Leslie Mary Carter Charitable Trust and the John Jarrold Trust

About the project

People with MND can experience changes in thinking, reasoning, and behaviour and these changes are referred to as cognitive and neuropsychiatric symptoms. Currently there are no established guidelines on how best to manage these cognitive and neuropsychiatric symptoms for those with MND. Due to this, and the lack of knowledge surrounding these additional symptoms in MND, Professor Mioshi and her team have been developing a MiNDToolkit. This toolkit consists of a collection of evidence-based guidelines and advice to be used in clinical practice to manage these behavioural and thinking symptoms in those with MND. It is hoped that the MiNDToolkit will empower families, carers and healthcare professionals to better manage these cognitive symptoms, improving the quality of life of those living with MND.

What does this mean for people living with MND?

The results of this research can help to alter the current NHS guidelines, changing the way in which cognitive and neuropsychiatric symptoms are managed for people living with MND.


Want to find out more about the project? Check out the resources below:


Improving Care Practice: Highlights from Perth - MND Research Blog

Project code: 934-794