Shielding and protecting vulnerable persons from COVID-19

Latest update 13/05/2020
Despite people living with MND not being identified as extremely vulnerable persons we have received information confirming that people with MND living in England can self-register as extremely vulnerable.

Find out how to self-register

The MND Association is extremely concerned to see that people with MND have not been included in the Government’s list of extremely vulnerable persons in their guidance on shielding and protecting vulnerable persons from COVID-19. This despite MND being included in the previously published guidance on social distancing.

We believe that this has very concerning implications for people with motor neurone disease and we are calling on the Government to define people with MND as being extremely vulnerable as a matter of urgency.

If you have MND we recommend that you still register as extremely vulnerable as this may help you get the best possible support.

For our latest advice on covid-19 for those affected by MND, visit

The MND Association has written an urgent letter to Secretary of State for Health and Social Care Matt Hancock urging him to include people with MND on the Government’s list of extremely vulnerable persons.

We are urging our supporters to email their MP, calling on them to put pressure on the Government to add MND to the extremely vulnerable persons list. Supporters can also tweet Matt Hancock directly.

Read our letter to Matt Hancock below.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262