Want to find out what’s going on at the MND Association, or share artwork, stories, poems and news ? You're in the right place. See our other pages for young people to find out about support, information and how to get involved.
"Take a deep breath in every now and then, and make the most of whatever is going on." Young carer
If you have artwork, stories, poems or news you'd like to share with others on these pages for young people, do let us know.
"It helps knowing other people are going through similar things and feel the same way." Young carer
Or write to us at:
Information feedback, PO Box 246, Northampton NN1 2PR
"It's important to do normal stuff like hang out with your friends, otherwise it's not a normal life." Young carer
Find more messages from other young people on our support page.
Sometimes, even if your own friends are supportive, it can help to meet other young people in a similar situation to yourself.
"Maybe do some kind of activity with others who understand how you feel. Doing something positive helps to take you away from sadness or loss, and you feel you're accomplishing something too...Then you rebuild a sense of who you are as a person and what you're capable of doing." Young carer
The annual Young Carers Festival provides lots of activities for young people who support someone with an illness or long term condition. It's time for you, where you can meet, chat, take part in activities or just relax. It is run by The Children's Society, who offer other support for young carers.
You can watch a video about the festival at the bottom of this page.
Please note that due to coronavirus restrictions, there may be changes to plans for events such as festivals or other group activities in 2020 and 2021.
If you would like to go to the festival, you need permission from your parent or guardian. You must also come as part of a supported youth or community group, such as a young carers project or school group. Tell your school, college or university if you are a young carer, as they can help find a young carers group near you. The Children's Society also has a search facility to find out about projects for young carers around the UK.
You can find out about other useful organisations on the support page for young people.
Don't forget that you can apply for a Young Person's Grant from the MND Association. The grant can be used to help you take a break, make a memory, have a day out or purchase something that will help you.
Find out more on our support page for young people or contact our Young Connect helpline as shown in the drop-down option below.
If you have questions about MND, or our information or services, contact our helpline for young people:
Helpline: 0808 802 6262
"The fact that your helpline can be contacted by young people as well as adults is the best part. You're here for us too." Young carer
For 24-hour emotional support, up to the age of 19, you can also contact:
Helpline: 0800 1111
Watch the video below to see footage from the Young Carers Festival in 2018.