Carers groups and events
It's important to take a little break. You may wish to spend some time talking to people who understand what you're going through or join an information event or discussion on a specific topic led by a facilitator.
Here you will find groups or events specifically for carers. If you would like to join one or just want to know more please contact the organiser as shown. If you are aware of any events, you can fill out the form below.
If you don't see anything in your area please contact MND Connect as we may be able to put you in touch with other organisations and services local to you.
List of groups or events
Carers Support Sessions
Organiser: Colin Pearson
Date: Typically on the 2nd and 3rd Tuesdays of the month (dependant on speakers availability
Time: 8:00pm - 9:00pm
Our Carers Support Sessions bring together carers and those undertaking supporting roles for a person living with MND from our Cleveland, Hambleton & Richmondshire, York, Scarborough & Bridlington and Hull & East Yorkshire Groups, however we are a friendly and inclusive group and welcome people from all over the country to our sessions.
A variety of subjects and topics have been covered ranging from Sleep, Intimacy, Touch Relaxation Techniques, in addition to our informal 'Care, Share & Relax' sessions.
Our sessions are relaxed and supportive, at the end of the day to allow you time to focus on your own well-being as well as build relationships with other local people undertaking similar caring/supporting roles and include a mix of participants. Run by the Area Support Co-ordinator and our local Groups Carers Champions, along with professionals and speakers depending on the subject matter we hope you will feel invited to join us and take advantage of these sessions as and when you feel appropriate.
Throughout the Autumn will look at 'Compassion Fatigue', 'Ask the Specialist Nurses' and 'Planning for/looking towards the future' with Co-op Legal Services.
To be added to our distribution list for future events please make contact by email address above, or check out our local carers support page on Facebook - MND Association Carers Support - Cleveland, North & East Yorks or search @CarersCNEY
Devon & Cornwall Support Group
Organiser: Jo Campbell
Date: Monthly from 12 January 2021
A support group for carers of people living with MND living in Devon & Cornwall. A friendly, informative meeting run on a four weekly rota. We vary the meetings - sometimes a chance for us all to chat and share experiences, invite guest speakers on topics of interest and even pamper sessions. Come along and give them a go, all welcome
The meetings take place via Zoom - for more information contact the organiser Jo Campbell
2021 dates - 12 January, 9 February, 9 March, 6 April, 4 May, 1 June, 29 June, 27 July, 24 August, 21 September, 19 October, 16 November and 14 December
East Midlands MND Carers Support Zoom Meeting
Organiser: Rachel Norman
Date: Every 3rd Wednesday of the Month
Time: 1:00pm - 3:00pm
Drop in virtual session for anyone currently caring for someone living with mnd and bereaved carers of people with mnd.
This is a gentle space for people to connect with each other, to share concerns, asks questions and talk about their journeys. The zoom meeting code and link are the same each month and there is no requirement to stay for the during of the meeting. We are very aware that people that currently have caring responsibilities may need to leave to attend to the person they care for at any point and this is both welcomed and common place.
Meeting ID: 996 3110 2710
If you haven't used Zoom before please get in touch and we can help you step by step and let you have a practice beforehand. This event is open to any carers past or present of people with mnd in the East Midlands.
Carers, Coffee and Chat
Organiser: Carmen Brown
Date: 15 January 2021
Time: 2:00pm - 3:00pm
Caring for someone with MND? Live in Essex?
Join our friendly group of carers, share tips, get advice and gain peer support. Please note, this is a carers only group. For more info on the carers group, support for people with MND or guidance in using zoom, contact Carmen Brown, email@example.com
To join meeting click:
Meeting ID: 930 6167 2421
Future dates include: 19 February 2021
Monthly Carers Meeting in Greater Manchester
Organiser: Gary Birkenhead
Date: First Thursday of each month
A monthly informal virtual meeting for carers in the Greater Manchester area that takes place via Zoom.
Carers, Coffee and Chat
Organiser: Carmen Brown
When: Second Tuesday of each month 2pm – 3pm
Dates: 12 January 2021
Caring for someone with MND? Live in Hertfordshire?
Join our friendly group of carers, share tips, get advice and gain peer support. Please note, this is a carers only group. For more info on the carer group, support for people with MND or guidance in using zoom, contact Carmen Brown, Area Support Coordinator for Herts and Essex: firstname.lastname@example.org
Meeting ID: 937 8155 5985
Dates for future groups include: 9 Feb 2021, 9 March 2021 (joining instructions and passcode are the same for each.
London Carers Group
Organiser: Ahmed Abdeldayem
Date: First Tuesday of the month
Monthly virtual group. Join us on Zoom:
Meeting ID: 880 4757 7715
West London Support Group
Organiser: Lisa Burnard
Date: 3rd Tuesday of the Month
West London Support group for people with and affected by MND via Zoom on 3rd Tuesday of the Month.
South Yorkshire Support Group
Are you supporting someone with MND and would welcome the opportunity to talk to others in a similar situation?
If so, you may be interested in joining us. We are currently running two local meetings, but we’re looking to set up more. The groups are small, the chat is informal and the support comes from others who have an understanding of your situation.
For more information contact Ann Quinn on email@example.com