For some, knowing there is a clear cause of their symptoms can come as a relief. For others, the diagnosis is like a thunderbolt.
Whatever reaction you have is completely normal and a whole range of advice, support and information is available. Whatever your circumstances, you need not feel alone, we are here to help.
This section provides answers to common questions at this time. You may wish to refer to the following pages:
We also encourage everyone newly diagnosed to contact MND Connect, our helpline team. They can put you in touch with support in your region and help assess your support needs.
Try to explore available statutory services as soon as possible after diagnosis. This will help you to maintain the best possible quality of life.
What do you want to do? Contact MND Connect Find out about the disease Manage the disease after diagnosis Find out about treatment and care Find out about the progression of the disease Find out if the disease is inherited Find out what services we provide Access further information and publications Find information for carers Locate support in my region Read personal experiences of others living with MND Talk to someone else affected by MND
Information for download
You may find these publications useful:
- »Publication List (190kb)
A list of all our publications with an order form attached
- »Living with motor neurone disease (1188kb)
Our main guide for people with MND, providing an overview of the disease and how to manage its impact. This can be downloaded or ordered as a printed pack with additional items from our helpline, MND Connect. The guide has been developed to help people with MND achieve the best possible quality of life from diagnosis onwards. It includes top tips, directions to further information and details about accessing support services. (Code: LW002)