"To stop my MND would mean everything to me. It would be a dream come true."
At 41 I should be looking forward to the future with my wife, Carly, and my three children. But aged 36, after month of tests, I was diagnosed with motor neurone disease (MND). The news was shattering. There is no cure. The chances are MND will take my life before I get to see my children grow up.
It’s the special days - like first days at school, family outings, and birthdays - that have become even more important. With MND, every special day together matters so much.
The day Carly and I were married.
The days our children were born.
Every day we have left to laugh together.
Now we never put things off - we live for the moment, trying to appreciate the good times when they come. Recently, our special day out was simply a family trip to a local Bluebell wood. Over coffee and cake afterwards I was taking it all in, enjoying it while I can, because this time next year I might not be able to.
My hope for the future lies in research.
We urgently need new treatments to slow down MND. The MND Association funds research to speed up the discovery of new treatments, but they need your help to go further faster.
If there was a treatment to stop my MND progressing it would mean everything to me, it would be a dream come true. It would allow me to carry on being a dad to my three kids, a husband to my wife, perhaps I could even go back to work. I could have a relatively normal life again - if I could just stop it in its tracks.
How can your donation help?
£20
Could help towards powering MND research by funding essential laboratory equipment.
£50
could help with the cost of home visits to monitor people with MND taking part in clinical trials.
£100
could help provide support funds so families can enjoy a special day out together.
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