Latest News
News
Why we’re campaigning on tofersen again
30 May 2025
Tofersen is a new treatment that is effective for the roughly 2% of people with MND who have a particular genetic change.
News
National TV coverage for Leeds Rhinos' MND awareness match
30 May 2025
SPORTS fans will be able to tune into live coverage of Leeds Rhinos’ annual MND awareness match which is being shown live on Sky Sports and BBC Two this weekend.
News
Kevin Sinfield CBE announces sixth challenge supporting MND charities
28 May 2025
Challenges have raised more than £10million
News
MND Register fulfils promise in supporting research progress
27 May 2025
Information shared by people with motor neurone disease (MND) through the MND Register is supporting the global effort to accelerate MND research and find causes, treatments and a cure for the disease
News
MIROCALS: what’s next?
15 May 2025
Our response to the Clinical Studies Group statement on the MIROCALS trial results
News
New support around accessing continuing healthcare (CHC) funding
14 May 2025
The pilot project aims to help individuals navigate the process of applying for continuing health care (CHC) funding
Association News
Rob Burrow Leeds Marathon runners brave the heat to raise more than £500,000
12 May 2025
Thousands turned out to cheer the runners around the 26 mile course
News
MIROCALS trial results published
9 May 2025
The results of the MIROCALS trial, investigating the impact of low dose interleukin 2 (IL-2) in people with MND, have been published in The Lancet
News
MND community comes together to Run for Rob
9 May 2025
The city of Leeds will come to a standstill this weekend