Latest News
News
Wales man with MND shares tofersen journey with Government panel
16 September 2025
Man living with SOD1 MND who travels hundreds of miles for tofersen treatment shares story with Government panel
News
People with MND help shape future of adult social care in Government review
11 September 2025
The MND Association has addressed the independent Casey Commission into adult social care
News
Association's runners raise more than £150,000 at Great North Run
10 September 2025
More than 200 runners took part in the Sunday's iconic run to raise money for the MND Association
News
‘Exceptional’ researcher wins the first Rob Burrow research prize
9 September 2025
New MND research prize launched by the MND Association in honour of our late patron Rob Burrow CBE
News
Political Snapshot - April to June 2025
13 August 2025
A snapshot of our political work throughout the quarter, in addition to our Parliamentary work for Global MND Awareness Day
News
Our response to the Regional Review of Neurology Services in Northern Ireland
12 August 2025
The assessment is aimed at improving neurology services through to 2035
Campaigns
Video to Wes Streeting sees emotional plea for tofersen access
11 August 2025
Seckin McGuirk, who is living with MND, urges the Health Secretary, Wes Streeting MP to take action
News
Tofersen receives MHRA approval
28 July 2025
The drug has now been granted marketing authorisation by the Medicines and Healthcare products Regulatory Agency (MHRA)
News
Our day of action and incredible ice sculpture in Westminster
24 July 2025
For the 2% of people with MND whose disease is caused by a change to their SOD1 gene, tofersen is a lifesaving treatment that can significantly slow or even pause the progression of their symptoms