Latest News
Association News
MND Association calls for greater awareness as two thirds know little or nothing about motor neurone disease
20 June 2025
Public urged to learn more about the hidden realities of motor neurone disease as Global MND Awareness Day approaches
News
MND-SMART trial opens new centres in York and Scarborough
19 June 2025
York & Scarborough Teaching Hospitals NHS Foundation Trust have joined pioneering clinical trial platform MND-SMART. Recruitment to the trial is underway (June 2025)
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Our response to the Government's Spending Review
11 June 2025
Our response to the Government's Spending Review
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New survey suggests nearly half of carers have a mental or physical condition due to caring
9 June 2025
From 9th June until 16th, each day of Carers Week will have a different focus.
News
Why we’re campaigning on tofersen again
30 May 2025
Tofersen is a new treatment that is effective for the roughly 2% of people with MND who have a particular genetic change.
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National TV coverage for Leeds Rhinos' MND awareness match
30 May 2025
SPORTS fans will be able to tune into live coverage of Leeds Rhinos’ annual MND awareness match which is being shown live on Sky Sports and BBC Two this weekend.
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Kevin Sinfield CBE announces sixth challenge supporting MND charities
28 May 2025
Challenges have raised more than £10million
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MND Register fulfils promise in supporting research progress
27 May 2025
Information shared by people with motor neurone disease (MND) through the MND Register is supporting the global effort to accelerate MND research and find causes, treatments and a cure for the disease
News
MIROCALS: what’s next?
15 May 2025
Our response to the Clinical Studies Group statement on the MIROCALS trial results