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Carers Financial Guidance and benefits

As a carer you may need to consider your own financial circumstances when caring for an individual with MND. You may be entitled to claim some form of government benefit. If you are eligible, the amount and type of benefit will depend upon individual circumstances.

The MND Association information sheet 10A – Benefits and entitlements will give you further details (also see Further information below).

There are different benefits which you may be entitled to.

  • Carers Allowance.
  • Carers Credit.
  • Carers Premium.

Information can be found at the GOV.uk website or the Carers Allowance Unit. Contact details:

England, Wales and Scotland
Telephone: 0845 6084321
Text phone: 0845 6045312

Northern Ireland
Telephone: 028 9090 6186

How to apply

  • You can claim Carers Allowance online or contact the Carers Allowance Unit (details above).
  • To claim Carers Credit visit the GOV.uk website and download the claim form, or contact the Carers Allowance Unit (details above).
  • To claim Carers Premium visit the NHS website.

Benefits calculator
You can use the benefits calculator on the following websites to give you an initial idea if you are eligible for any type of benefit:

Further information
We also provide a comprehensive guide for family carers, covering a wide range of practical and emotional support, called ‘Caring and MND: support for you’. This is available in print only and can be ordered from our helpline MND Connect. Telephone 03457 626262 or email mndconnect@mndassociation.org. You can also get further guidance and support from our helpline.

Alternatively, you can contact Carers UK at www.carersuk.org, telephone: 0808 808 7777.

Information for download

You may find the following publications helpful:

10A - Benefits and entitlements
Information on the types of benefit and entitlement available, and whether you are likely to qualify, with guidance on how to apply.

10B - Direct payments and personalisation
Information about personal budgets for social care needs and personal health budgets for healthcare needs, and how you can use direct payments to manage these to buy your own services.

10C - Disabled Facilities Grants
Guidance on how and when to apply for a Disabled Facilities Grant (DFG) and other benefits regarding housing.

10D - NHS Continuing Healthcare
Details about NHS Continuing Healthcare and how to apply.

10E - Work and motor neurone disease
Information about available options if you are living with MND and considering whether to continue or leave employment, including information about the Access to Work scheme.