Awareness changes lives
We need people to know about MND, to understand it and to see the devastation it wreaks on people’s lives. Only then can we affect the change that’s so desperately needed.
We’re constantly striving to reach new audiences – looking for new ways, new channels and new stories – to spread that awareness and inspire people to engage with us.
How we raise awareness
We capitalise on calendar dates – Global MND Awareness Day each June is a key date in our calendar. But we don’t just wait for 21 June to come around. We work hard all year to ensure MND and the work of the Association is on the news agenda, is being talked about by decision makers and is in the conscience of the general public.
We create opportunities – like our Unlock the Door campaign which is delivering real change at local authority level, and secured front page of the Daily Express through our eye-catching ice sculpture, which raised awareness of our Prescribe Life campaign.
We use opportunities created by others – for instance we spread the word about our supporters’ incredible fundraising initiatives, like our patron Sir Kevin Sinfield’s heroic sporting challenges and showcasing the partnerships we hold with key corporates, like Toyota.
We tell the stories of people affected by MND – if you haven’t listened to our monthly podcast MND Matters, do tune in and subscribe to make sure you don’t miss an episode. And you can read more stories from people affected by MND in Thumbprint, our members’ magazine.
We’ve secured slots on national television and radio, in national and regional newspapers, on local and community radio, in dozens of magazines and publications, hundreds of websites and social media posts.
We target our awareness at individuals, groups and organisations which can make a real difference. And for the last 36 years we've organised the International Symposium on ALS / MND, the largest medical and scientific conference on the disease. In 2025, we welcomed over 1150 delegates from around the world to hear the latest in ground-breaking MND research in the hope of taking us closer to tomorrow's treatment.
We need your help too
Everything we do as a community can be used to raise awareness of MND and our vital work. We just need to tell people about it! Talk to people, use your social media channels and encourage your friends to follow ours, put up posters, encourage your network to listen to our podcast, share your story...
