Sometimes emotional, sometimes humorous, always honest – MND Matters gives people affected by MND the chance to share their stories.
With more than 30 episodes available, MND Matters brings together insight, experience and guidance from experts and people affected by motor neurone disease (MND). Each episode offers clear, trusted information alongside honest conversations about the realities of living with MND.
Listen to the latest episode below, or explore previous episodes to hear practical advice, personal stories and reflections on topics such as managing emotions, supporting family members and becoming a carer for someone with MND.
Our guests include people with MND, those close to them, our ambassadors and health and social care professionals.
Listen to episodes of MND Matters using the links below, or search MND Matters in your preferred podcast app.
Latest episode
Episode 40: Preserving your voice
In this episode of MND Matters, we explore the world of voice banking and how rapidly evolving technology is changing the way people stay heard. Guided by questions from you - the MND community - Steph and speech and language therapist Jen Benson unpack why our voices are such a core part of who we are, and how voice banking helps preserve that identity.
Jen shares when to get started, what to do if your voice has already changed and how AI is creating increasingly natural digital voices. We also highlight support available, funding options and the wide range of devices and access methods now available - even for those with limited movement.
Find out more about our financial support
Contact our MND Connect helpline on 0808 802 6262 or email mndconnect@mndassociation.org
Meet your hosts
Helen
Hi, I'm Helen, I am a Relationship Fundraiser for the MND Association and I have the privilege of helping all the amazing people fighting and fundraising against MND in the South West while also working alongside the incredible MND local branches and groups across the region.
I joined the Association in January 2021 and couldn't be prouder to be helping make a difference in my own little way. My grandad sadly died of MND so I'm incredibly passionate to raise as much awareness as possible which is why I'm so excited to join the podcast team.
I live just outside Bristol and when I'm not working or helping raise money for MND you might find me volunteering with my local search and rescue team.
Nick
Hi, I'm Dr Nick Cole and I'm the Head of Research at the Association. My passion for MND research started in 2010 when I was living in Australia where I applied some of my research involving zebrafish to MND. From that moment, I was hooked on trying to understand more about this complex disease and help the people affected. I was so excited to see the Head of Research job open up at the Association and I haven't looked back.
Presenting MND Matters is a huge honour, I feel privileged to hear first hand the stories and experiences of people affected by MND. Fun fact: In 2015 I broke the Guinness World Record for the Longest Kitesurf Journey while raising money for MND research.
Steph
Hi, I'm Steph, and I've worked at the Association for over seven years, previously in the fundraising team and currently as National Care Manager. I currently oversee our grants programme, which offers financial support to people living with and affected by MND.
Before I joined the Association I couldn't even jog around the block but I completed my first #TeamMND marathon in 2018 and haven't stopped running since, although since becoming a mum I am more of a 5k buggy runner!
Domonique
Hello. I'm Domonique, the Personal Stories Specialist at the Association. I'm passionate about raising awareness of the impact MND has on the individual, their family and friends, and their home. I work closely with the MND community including people affected, volunteers, health and social care professionals and researchers.
I'm honoured to be a part of the MND Matters hosting team and hope to create meaningful and impactful podcast episodes.
Previous episodes
You can listen to all previous episodes on your chosen podcast platform. You can find out more about each episode and read the transcripts on the page below.
Views and opinions expressed by guests on MND Matters do not necessarily represent those of the MND Association. We make every effort to ensure the information we share is accurate. We welcome comments, suggestions or corrections. Please email communications@mndassociation.org
Please consult your health and social care professional for medical advice in relation to your particular circumstances. This podcast is owned by the MND Association. Registered Charity no. 294354.