Sometimes emotional, sometimes humorous, always honest – MND Matters gives people affected by MND the chance to share their stories.
With more than 30 episodes available, the podcast offers a wealth of information and insight from experts and members of the MND community.
Listen to the latest episode below, or dip into the library of previous episodes to hear informal advice, information and real-life experiences about a range of topics including managing emotions, family support and becoming a carer for someone with MND.
Guests include people affected by MND, VIP ambassadors of the Association and health and social care professionals.
Listen to episodes of MND Matters using the links below, or search MND Matters in your chosen podcast provider.
Meet your hosts
Helen
Hi, I'm Helen, I am a Relationship Fundraiser for the MND Association and I have the privilege of helping all the amazing people fighting and fundraising against MND in the South West while also working alongside the incredible MND local branches and groups across the region.
I joined the Association in January 2021 and couldn't be prouder to be helping make a difference in my own little way. My grandad sadly died of MND so I'm incredibly passionate to raise as much awareness as possible which is why I'm so excited to join the podcast team.
I live just outside Bristol and when I'm not working or helping raise money for MND you might find me volunteering with my local search and rescue team.
Nick
Hi, I'm Dr Nick Cole and I'm the Head of Research at the Association. My passion for MND research started in 2010 when I was living in Australia where I applied some of my research involving zebrafish to MND. From that moment, I was hooked on trying to understand more about this complex disease and help the people affected. I was so excited to see the Head of Research job open up at the Association and I haven't looked back.
Presenting MND Matters is a huge honour, I feel privileged to hear first hand the stories and experiences of people affected by MND. Fun fact: In 2015 I broke the Guinness World Record for the Longest Kitesurf Journey while raising money for MND research.
Steph
Hi, I'm Steph, and I've worked at the Association for over seven years, previously in the fundraising team and currently as National Care Manager. I currently oversee our grants programme, which offers financial support to people living with and affected by MND.
Before I joined the Association I couldn't even jog around the block but I completed my first #TeamMND marathon in 2018 and haven't stopped running since, although since becoming a mum I am more of a 5k buggy runner!
Domonique
Hello. I'm Domonique, the Personal Stories Specialist at the Association. I'm passionate about raising awareness of the impact MND has on the individual, their family and friends, and their home. I work closely with the MND community including people affected, volunteers, health and social care professionals and researchers.
I'm honoured to be a part of the MND Matters hosting team and hope to create meaningful and impactful podcast episodes.
Latest episode
Episode 36: Driving change for the MND community
In this episode of MND Matters, Chief Executive Tanya Curry and Director of Engagement Richard Evans reflect on a transformative year for the MND Association. From record-breaking fundraising and expanded grants to bold advocacy and the launch of a research nurse network, Tanya and Richard share how the Association is stepping up with urgency and ambition to focus on delivering more impact, including faster access to emerging treatments, targeted support, and a louder voice for the MND community.
Episode 35: Transforming MND research with AI: Longitude Prize on ALS
In this episode of MND Matters, Helen is joined by Tris Dyson from Challenge Works, and the MND Association’s Dr Mike Rogers and Dr Brian Dickie, to explore the groundbreaking £7.5 million Longitude Prize on ALS. This global challenge aims to revolutionise drug discovery for ALS, the most common form of motor neurone disease, by harnessing the power of artificial intelligence. Tris, Mike and Brian discuss how AI-based approaches can transform drug discovery for the treatment of ALS, and accelerate progress towards effective therapies.
Find out more about the prize, or how to enter, by visiting https://als.longitudeprize.org/
Previous episodes
You can listen to all previous episodes on your chosen podcast platform. You can find out more about each episode and read the transcripts on the page below.
Views and opinions expressed by guests on MND Matters do not necessarily represent those of the MND Association. We make every effort to ensure the information we share is accurate. We welcome comments, suggestions or corrections. Please email [email protected]
Please consult your health and social care professional for medical advice in relation to your particular circumstances. This podcast is owned by the MND Association. Registered Charity no. 294354.