MND Association patron Rob Burrow CBE sadly died on 2 June 2024, four and a half years after he was diagnosed with motor neurone disease.  

Throughout that time, Rob and his family bravely chose to publicly share their MND journey to raise awareness of the disease. All of us at the Association are incredibly grateful for everything they have done. 

Rob has inspired so many individuals, families, clubs and societies, companies and trusts to support the work of the Association, by taking on challenges, fundraising and donating. We are grateful to all of those supporters for their generosity and their desire to fight back against this devastating disease. 

If you have been affected by this news or would like support for yourself or a loved one who is living with or affected by MND, please contact our MND Connect helpline. 

And of course our work will – indeed must – continue until we are able to realise our vision of a world free from MND. 

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