Our aim is to provide people with MND the opportunity to take part in research studies. Below we list research projects that currently recruit participants for their study. These do not always involve testing a treatment (clinical trials). Most are focused on understanding the causes of MND, and improving diagnosis, care and quality of life of people affected by the disease.
To get notified about new research opportunities by email, you may wish to sign up to our MND Research list and newsletter. You can also find the clinical research projects taking place in the UK on the UK MND Clinical Studies Group website.
Treatment Trials
Symptom Management
Pressure ulcer prevention at home
Recruiting people with MND, carers and healthcare professionals in England
OptiCALS: A Randomised Controlled Trial to evaluate a nutritional management intervention
Recruiting people with MND and their carers UK-wide
TVLife: Understanding living with tracheostomy ventilation for MND and the implications for quality of life
Recruiting people with MND, family member and healthcare professionals UK-wide
SETTLE: Investigating how to increase cough strength by improving "cough assist" devices
Recruiting people with MND around London
Assessment and management of cough and secretion problems in MND
Recruiting healthcare professionals supporting people with MND UK-wide
Biomarker Studies
ALS Biomarker Study: Collecting biological samples to search for biomarkers
Recruiting people with MND, healthy controls and neurological controls in London
C9orf72 Cohort Study: Collecting biological samples to search for causes of C9orf72-MND
Recruiting people with MND, family members and healthy controls in Oxford
Living Lab: Developing new technologies to help people with long-term diseases live at home for longer
Recruiting people with MND and older adults (65+) in London
AMBRoSIA: Searching for unique fingerprints of MND for faster diagnosis
Recruiting people with MND, first-degree relatives and healthy controls UK-wide
MIND MAPS ALS: Using neuroimaging to understand the mechanisms of ALS
Recruiting people with MND in London
Improving Wellbeing
TONiC: Examining the factors influencing qualify of life in neurological conditions
Recruiting people with MND UK-wide
Understanding the impact of a virtual peer support programme on wellbeing and caregiver burden
Recruiting peer supporters and carers UK-wide
Other Studies
MND Register: Collecting information about every person living with MND in England, Wales and Northern Ireland
Recruiting people with MND in England, Wales and Northern Ireland
Developing a stimulation-free remote motor unit number estimate (REMUNE) in MND
Recruiting people with MND, their carers and family members in London
LTC study: Evaluating a new scale designed to measure mood in people living with a long-term physical health condition
Recruiting people with MND
Neuro Digital: Investigating the factors that affect the use of digital health technology
Recruiting people with MND UK-wide
Sheffield MND Research Advisory Group
Recruiting people with MND, their carers and family members
Experiences of genetic testing in MND
Recruiting people with MND UK-wide