Here you can find more information about the projects we are funding that are improving standards of care. Click on a project to find out more information and what the project means to a person living with MND.

Ensuring that the clinical management of MND is informed by the priorities of people living with the disease and their families, and is supported by a strong evidence base.

Developing a patient decision aid to support genetic testing in MND

Dr Alisdair McNeill

UK MND Clinical Studies Group Co-ordinator

Prof Chris McDermott/ Stacy Young

Understanding living with tracheostomy ventilation for MND

Dr Eleanor Wilson

MND Register for England, Wales and Northern Ireland

Prof Ammar Al-Chalabi and Prof Kevin Talbot

Testing an online peer-to-peer support programme for family caregivers

Prof Louise Rose

Home initiation and monitoring of non-invasive ventilation versus hospital-based care in people with MND

Dr Dariusz Wozniak

iDeliver MND: improving delivery of psychological care in MND

Dr Emily Mayberry

Complex Homecare in MND (CHiMND)

Dr Eleanor Wilson