The Motor Neurone Disease (MND) Association is able to offer some financial support to help with:
- cost of living support to help with household bills and food shopping
- funding equipment and services that people with MND have been assessed as needing
- funding for children and young people living with someone with MND
- non-paid carers supporting someone living with MND
- improving quality of life for someone living with MND
These are not in place of any statutory funding that should be available, however we can assist with obtaining statutory funding or funding from other charitable organisations.
Who can apply for grants?
Most of our grants can be applied for by the person living with MND, a family member, volunteer or health and social care professional. There is only one, the MND Support (Care) Grant, which must be applied for by a health and social care professional.
What grants are available?
You can view each of the grants below. Each section confirms who is eligible for the grant and what the grant can provide, who can apply for the grant and a link to the application form.
We've also have a useful flyer to provide guidance on what grants are available and whether you can apply.
How do I apply?
Each of the grants below has a link to the application form. These are all in word format and can be saved and emailed to us, or printed and posted to us. Each form will explain what to do.
Cost of Living Support Fund
We are offering a one-off Cost of Living Support Fund up to the value of £500. This is to help people living with MND who may be struggling with household bills or food shopping costs. If you have received a Cost of Living Support Fund of £350 before 31 October 2024, you can apply for a further £150 should you need to, until the end of the year. This fund is under continuous review.
If you would like to apply, a simple form asks you to outline how additional costs have affected your income or finances. You can download the application form here:
Cost of Living Support Fund application form
Cost of Living Support Fund FAQs
Your application will then be considered. If you are awarded this fund, we will arrange for the payment to be made to you.
As the increased cost of living continues to impact all our lives and brings challenges, you may find our Cost of Living Hub helpful. You’ll find further information about support available to you and your family, including information on the Association’s Benefit’s Advice Service for England, Wales and Northern Ireland.
MND support (care) grant
We offer this grant to anyone living with MND. It can be used only once an assessment has been made and all statutory funding options have been explored. When considering the grant application, please follow the steps below:
- Assessment is made by a qualified health or social care professional (HSCP).
- Statutory funding should be sought at this point (we can assist and offer advice).
- If funding is not available or is not timely, the HSCP should complete the Support (Care) Grant application form and send it to support services.
- On receipt of the application we will review the request and the supporting evidence.
- A decision on the amount to be offered will be communicated to the applicant. Please note this is unlikely to be the full cost of a provision.
Who can apply? Only Health and Social Care professionals can apply for this grant.
HSCP’s can download the MND Support (Care) Grant form below.
Quality of life grant
We offer this grant to anyone living with MND. We would encourage you to approach your local branch or group to apply for this grant. You can find the one nearest to you by using our local support search.
Who can apply? Any family member, Association Visitor, Health & Social Care Professional or Area Support Coordinator.
If you cannot find your local branch or group, or if they have been unable to provide support you can apply to the national office by downloading the Quality of Life grant form below.
Carer's and young carer's grant
If you are the main unpaid carer aged 16 or over caring for someone with MND, we may be able to assist you with a Carer’s/Young Carer’s Grant within a rolling twelve month period. The aim of the grant is to allow the main non-paid carer to take a break from their caring duties. This may be a pamper day, a short break or assistance towards pursuing a hobby and can be applied for up to 12 months post bereavement.
Who can apply? Any family member, Association Visitor, Health & Social Care Professional or Area Support Coordinator.
You can download the Carers’ Grant application form below.
Children and Young person's grant
We offer a grant for young people aged 18 or under who are residing with a person with MND, to help support purchases of anything that may help them in their day to day life. This may be a contribution to buying a laptop, going on a school trip or any type of financial support and can be applied for up to 12 months post bereavement.
If you are a parent or carer of someone aged 18 or under or even know someone in this age group who is living with someone with MND that may benefit from a grant of up to £250, within a rolling twelve month period, then please complete and submit the form below. If we are unable to offer the grant we will tell you as soon as we can.
Who can apply? Any family member, Association Visitor, Health & Social Care Professional or Area Support Coordinator.
You can download the Young Person’s Grant application form below.
View our Policy and Guidance documents on our Support Grants.
You may also be interested in our Support Grant Review.
Other funding available
You can find further information and guidance on other sources of funding that you may be eligible for from other organisations.
Our affiliate partner in Jersey has a limited bursary fund for holidays on the island. Details can be found on on their branch page.
Do you need further support?
If you have any questions in relation to our grants or need help applying, please contact our MND Support Services team. Call us on 0808 802 6262 or email us.