14 October 2025 Advocacy

Meet Debbie...

Debbie, mum to Jacob, Paris and Talia, was diagnosed with MND in 2022 at just 55. The charismatic hairdresser first noticed symptoms when she struggled to hold her hairdryer when working with clients. Following a series of misdiagnoses - including menopause - Debbie was determined to share her story online and support other women with MND. Passionate about raising awareness wherever she goes, Debbie decided to decorate her equipment with eye-catching bright colours and sparkles. Here, she tells us about her experiences of life with MND and the value of support.

Zoe on top of a mountain in Morocco
PLS

Zoe

13 October 2025
Zoe lives in London and was diagnosed with MND in 2022 after noticing early symptoms when recovering from a serious back operation. Zoe is passionate about raising awareness.
Nickie with her hose at the stables
Legacy Stories

Nickie

13 October 2025
We interviewed Nickie at the stables - her happy place - to find out what life with MND is like and how she keeps positive during the daily challenges MND presents.
Alex in his powerchair outside
Support grants

Alex

14 October 2025
Alex was diagnosed with MND in 2021 at the age of 30. Alex and his husband Craig made the decision to embrace life and make as many special memories as possible.