Professional development and information – Reviews of 2024
22 January 2025
We are proud to share our reviews of our achievements in 2024:
- The Professional Development Review highlights the year’s educational initiatives, including webinars, workshops, and competency-building sessions, all designed to enhance the expertise of health and social care professionals working with MND. It also showcases new resources, such as updated publications, the professional information finder tool, and guides on advance care planning and Kennedy’s disease, alongside updates from the MND Professionals' Community of Practice.
- The Care Information Review covers updated resources, improvements to our website, and collaborations with users, carers, and professionals to ensure the delivery of accurate, relevant content. Looking ahead to 2025, we preview new guides, video interviews, and expanded audio resources to continue providing trusted, accessible care information.
View Professional Development Review
2025 Education events now open for bookings
6 January 2025
We have launched our education calendar for 2025, offering both online and face to face events for your professional development. Our events cover a wide range of topics that are are relevant to the discussions within our community, being critical to the care of people living with or affected by MND.
In our programme you can find:
- education webinars - these online events will start in January and will cover topics such as respiratory issues in MND, complementary therapies and the use of Botulinum Toxin in MND care
- face to face workshops - these one day long sessions will give you an opportunity to discuss with experts and your peers advance care planning, communication difficulties in MND, nutritional management and respiratory care
- online competency session - this one day long event will focus on the management of communication difficulties in MND.
Launch of our new Kennedy's disease booklets
12 November 2024
We are delighted to announce the launch of our two new booklets on Kennedy’s disease, a rare disorder of motor neurones, caused by genetic mutation. Although not strictly a form of MND, the MND Association supports those living with or affected by Kennedy’s disease.
Our new booklet An introduction to Kennedy's disease is designed to support health and social care professionals to understand and address the complex needs of people living with Kennedy’s disease. The resource provides an overview of the disease, covering key aspects of diagnosis, gene inheritance, and symptom management. It also highlights the range of support options available to those affected.
We also published a new Kennedy's disease guide, which can help people with or affected by Kennedy's disease understand the symptoms, living with the condition and the guidance and support available.
An introduction to Kennedy's disease for health and social care professionals
Kennedy's disease: information for people with or affected by Kennedy's disease
New search tool for professionals
23 May 2024
We are delighted to launch our new Professional Information Finder tool. We have a wide range of information resources available to support you as a health and social care professional, and for the people living with MND you work with.
As our provision has expanded over the years, it can be challenging for professionals to find exactly what they are looking for. We currently have almost 200 resources that may be of interest to you or your patients, in a wide range of formats such as webinar recordings, infographics, videos, booklets and much more.
Our new tool helps you to easily find all our resources on a specific topic or for a specific profession. The results will include links to all of our resources for you, and for the people with or affected by MND you are supporting. You can select multiple topics at once if you wish, and can then send those via email, either to someone else or yourself.
Try the professional information finder
New booklet on inherited MND
12 April 2024
We have launched a new booklet for people with or affected by MND: Inherited MND and genetic testing.
The aim of this overview is to help people with MND, or who have a family history of the condition, find guidance about genetic counselling and genetic testing.