Registrations open for the Community of Practice Annual Networking Event
13 May 2025
Members of our MND Professionals' Community of Practice can now register to attend our 2025 Annual Networking Event, which will take place on Tuesday 7 October at the National Conference Centre in Solihull, Birmingham.
The event is a unique opportunity to connect with professionals from all over the country and actively learn with and from them about key issues in MND care. This year's theme is Supporting choice and control for people living with and affected by MND.
The day will be filled with inspiring activities, including meeting with exhibitors and joining hands-on demonstrations of equipment, including PEG insertion and orthotics. Attendants will have the opportunity to choose between several workshop-style sessions, where subject experts will help them explore issues such as genetic testing, assisted dying and treatment refusal.
Learn more about the event and book your place
Become a member of the Community of Practice
New infographic on psychological and social care support
30 April 2025
We are thrilled to announce the launch of a new infographic on Psychological and social care support in MND. This resource is designed to assist health and social care professionals in delivering essential mental health and social care to people living with and affected by this condition.
Our new infographic is part of our ongoing commitment to develop new resources that help professionals address emerging urgent issues in MND care. It offers an accessible, practical summary of NICE guidelines, promoting best practice and helping meet national recommendations.
If you have any questions or feedback on our resources or would like to help us review information for professionals, please email us at [email protected].
See our resources for professionals
Revised resources on multidisciplinary team working in MND
26 March 2025
We have revised our resources to help professionals work in a multidisciplinary team (MDT) to improve support and care outcomes for people living with and affected by MND.
Our MDT infographic provides a quick summary of national recommendations on MDT working in MND to help you maintain best practice. Our main guide examines in more depth the principles of MDT working and its benefits for people with MND, care services, and professionals.
It also includes practical advice and insights from expert MND professionals on how to establish, maintain and review an effective MDT, and deliver comprehensive person-centred care.
Learn more with our new dedicated webpage below. If you have any questions or feedback on our resources or would like to help us review information for professionals, please email us at [email protected].
Meet the multidisciplinary team
Updated speech and communication resources for health and social care professionals
17 February 2025
We have now updated our resources for health and social care professionals on supporting people with MND with communication difficulties.
- The Communication, speech and language support guide - Our main guide for professionals on speech and language problems in MND, and the range of support and options available.
- The AAC pathway - This focuses on service provision for people with speech difficulties, with a step-by-step pathway for professionals to follow to help people with MND access the support they need.
- The Speech infographic - A handy infographic highlighting the key points and recommendations in the NICE Guideline on MND.
If you have any questions or feedback on our resources or would like to help us review information for professionals, please email us at [email protected].
View our Publications for Professionals
Professional development and information – Reviews of 2024
22 January 2025
We are proud to share our reviews of our achievements in 2024:
- The Professional Development Review highlights the year’s educational initiatives, including webinars, workshops, and competency-building sessions, all designed to enhance the expertise of health and social care professionals working with MND. It also showcases new resources, such as updated publications, the professional information finder tool, and guides on advance care planning and Kennedy’s disease, alongside updates from the MND Professionals' Community of Practice.
- The Care Information Review covers updated resources, improvements to our website, and collaborations with users, carers, and professionals to ensure the delivery of accurate, relevant content. Looking ahead to 2025, we preview new guides, video interviews, and expanded audio resources to continue providing trusted, accessible care information.
View Professional Development Review
2025 Education events now open for bookings
6 January 2025
We have launched our education calendar for 2025, offering both online and face to face events for your professional development. Our events cover a wide range of topics that are are relevant to the discussions within our community, being critical to the care of people living with or affected by MND.
In our programme you can find:
- education webinars - these online events will start in January and will cover topics such as respiratory issues in MND, complementary therapies and the use of Botulinum Toxin in MND care
- face to face workshops - these one day long sessions will give you an opportunity to discuss with experts and your peers advance care planning, communication difficulties in MND, nutritional management and respiratory care
- online competency session - this one day long event will focus on the management of communication difficulties in MND.
Launch of our new Kennedy's disease booklets
12 November 2024
We are delighted to announce the launch of our two new booklets on Kennedy’s disease, a rare disorder of motor neurones, caused by genetic mutation. Although not strictly a form of MND, the MND Association supports those living with or affected by Kennedy’s disease.
Our new booklet An introduction to Kennedy's disease is designed to support health and social care professionals to understand and address the complex needs of people living with Kennedy’s disease. The resource provides an overview of the disease, covering key aspects of diagnosis, gene inheritance, and symptom management. It also highlights the range of support options available to those affected.
We also published a new Kennedy's disease guide, which can help people with or affected by Kennedy's disease understand the symptoms, living with the condition and the guidance and support available.
An introduction to Kennedy's disease for health and social care professionals
Kennedy's disease: information for people with or affected by Kennedy's disease