Updated publications
22 February 2024
We are pleased to announce the release of two revised booklets for health and social care
professionals:
Occupational therapy for MND: Our main guide for OTs supporting people with MND, endorsed by the Royal College of Occupational Therapists. This comprehensive guide provides information about MND and how to support people to adapt to their changing symptoms and achieve the best possible quality of life.
MND – a guide for social care services: Our main booklet for social care professionals, including social workers, endorsed by the Association for Palliative Care Social Workers. It includes detailed information about the impact of MND, and guidance on how to provide appropriate social care services and support.
You can download all of our publications for professionals from our website, or order hard copies from MND Connect.
New advance care planning resource
5 February 2024
We are delighted to launch our new booklet for health and social care professionals - Advance care planning for MND.
Advance care planning involves discussing, documenting, and respecting the wishes and preferences of people with MND regarding their future care. This booklet includes information and practical strategies to support professionals to effectively facilitate advance care planning for people with MND.
Topics covered include:
- benefits and challenges of advance care planning
- discussions about advance care planning
- key decisions and documents
- planning for urgent situations
- recording and communicating decisions.
View Advance care planning for MND
Round up of 2023
17 January 2023
We have produced reviews of our work in 2023!
Care information review: Highlights include a re-assessment for our PIF Tick accreditation, new and revised resources, migration to the new website and user engagement throughout the year. There’s also a glimpse of our exciting plans for 2024 and beyond.
Professional education review: Includes details of the wide range of educational opportunities we have provided to health and social care professionals in 2023, with handy links to our recordings. It also gives details of how professionals can get involved in 2024.
Read care information review Read professional education review
2024 Education events now open for booking
3 November 2023
Our webinars and information and knowledge exchanges are now on our calendar of events, so please do book your place and join us to explore topics including pain management, identifying and managing behavioural change in MND and much more.
October newsletter now available
1 November 2023
The latest edition of our Education newsletter has now been emailed out. It includes features on new fellowships for health and social care professionals, a countdown to the 34th International Symposium on MND and details of all the upcoming MND Education events.
Sign up here to receive our newsletter direct to your inbox every month.
Jargon busting
30 October 2023
When reading about MND or Kennedy’s disease, do your patients ever wonder what some of the initials or words mean?
We have created a new web page which contains a list of acronyms and words to help explain some of the health and social care jargon. The entries are arranged by subject matter in alphabetical order.