15 October 2025 Communication aids

Meet Tahira and Amna...

Tahira, a former teacher and mother of four, was diagnosed with MND in 2020 after experiencing symptoms for 18 months. Initially, she felt a lump in her throat, followed by speech difficulties and progressive weakness. Despite the devastating impact, including the loss of speech and mobility, Tahira remains positive and supported by her family and faith. She emphasises the importance of focusing on the person rather than the illness. 

Amna describes the initial confusion and eventual confirmation of the disease, the challenges of balancing professional and personal roles, and the importance of organisation and communication. Amna emphasises the need for cultural awareness and openness about MND within the Asian community and reflects on her mother's strength and the lessons learned, expressing gratitude and resilience in the face of the disease's progression.

Nickie with her hose at the stables
Legacy Stories

Nickie

13 October 2025
We interviewed Nickie at the stables - her happy place - to find out what life with MND is like and how she keeps positive during the daily challenges MND presents.
Eugene with his wife, Nicola, and their children
Living with MND

Eugene

15 October 2025
Eugene lives in Chelmsford with his wife Nicola and their two children. Before his MND diagnosis, Eugene had a very active life, and the family spent five years living in Hong Kong for Eugene’s work.
Debbie at PRIDE
Advocacy

Debbie

14 October 2025
Debbie was diagnosed with MND in 2022 at just 55. Following her diagnosis, she was determined to share her story online and support other women with MND.