Exploring the experiences of people who have been through Social Care Needs Assessments

Little is known about the experiences of people who have been through Social Care Needs Assessments. As defined by the NHS, this assessment is carried out by someone from the local council, such as an occupational therapist or social worker, to assess how well someone is coping with everyday tasks such as washing, dressing, and cooking. They may recommend practical help from a paid carer, or changes to the home. A Carer's Needs Assessment, as defined by the NHS, looks at things which could make a carer's life easier, including someone to take over caring so they can have a break, help with gardening and housework, and advice about benefits for carers. 

There are several barriers to accessing a Social Care Needs Assessment or Carer's Needs Assessment. This includes geographic location, age, gender, ethnicity and education. The aim of this study is to explore the experiences of people living with a neurodegenerative condition (such as MND), and their unpaid carers, around getting a Social Needs Care Assessment/Carer's Needs Assessment and subsequent support and care services provided. The researchers would like to find out how easy or difficult the process was, whether people received all the support they required, and what type of support people living with a neurodegenerative condition and their unpaid carers may be lacking. 

 

Taking Part

What does taking part involve?

The researchers would like to conduct interviews with people living with MND and their unpaid carers. This will involve a telephone or online (via Microsoft Teams) interview with one of the researchers, at a suitable date and time. The interview will focus on experiences of going through a Social Care Needs Assessment. The interview will last around 45 minutes, and will be audio recorded. 


The researchers would also like unpaid carers to complete a survey (either online or by telephone) about their experiences of Carer’s Needs Assessments, and accessing care and support after an assessment. The survey will take around 15 minutes. 
 

Who can take part?

For interviews: 

  • People living with MND who have received a Social Care Needs Assessment in the last two years
  • Unpaid carers of people living with MND who have received a Social Care Needs Assessment/Carer's Needs Assessment in the last two years

For the survey: 

  • Unpaid carers of people living with MND who have received a Social Care Needs Assessment/Carer's Needs Assessment in the last two years

How can I take part?

To take part in the study or for more information, please contact Clarissa Giebel, [email protected], or Emma Williams, [email protected]. To take part in the survey for carers, visit the Social Care Needs Assessments Survey 

Study location

England

Funding

This study is funded by the National Institute for Health and Care Research (NIHR)