Home About MND Information resources Useful organisations and internet sites

Useful organisations and internet sites


Woman reading the useful organisations section of our Living with MND guide


“Knowing who you can contact and where to begin asking is a great advantage.” Person affected by MND

The organisations shown here provide support on a range of subjects relevant to MND and Kennedy’s disease. This list may be helpful if you have MND, provide support as a carer, or if you are a family member or friend close to someone who has been diagnosed. We try to ensure each organisation is a reliable source, but cannot take responsibility for content on external websites. We do not necessarily endorse any resources, products or services. Select from the following to find out more.

If you are a young person affected by MND, see our support for children and young people page.

Support for daily living with MND or Kennedy's disease
Support for carers, family and friends
Organisations to help you support children and young people
Healthcare organisations and emergency contacts
Symptoms, therapies and treatments
Work, benefits and social care
Speech and communication support
Travel and transport
Interests and entertainment
Emerging technology
Planning ahead for future and end of life care
Bereavement support
Tell us your thoughts on the About MND area of the website Page last updated: 12/17
Next review: 06/19

For further information and support, contact our MND Connect helpline:
MND Connect logo MND Connect Phone Number - 0808 802 6262

See our online forum for support and sharing with others affected by MND:
MND Forum logo

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