MND Connect Helpline

The MND Connect team offers information and support on all aspects of motor neurone disease (MND), including symptom control, practical management, improving quality of life, clinical research and signposting to other organisations.

Get in touch with MND Connect

MND Connect is available Monday to Friday between 9am - 5pm and 7pm - 10:30pm. Calls to this number are free from landlines and mobile phones within the UK and do not appear on itemised bills.

If you struggle with English please let the adviser know. We can arrange for an interpreter to provide a simultaneous translation between your chosen language and English.

See below for emergency and out of hours contact options.

The service is for:

  • people living with MND
  • carers
  • family members
  • health and social care professionals
  • MND Association staff and volunteers

or anyone else affected by MND.

MND Connect Roadsign

We provide:

  • information about MND and how to manage with symptoms
  • emotional and practical support
  • social, practical and financial information
  • contact details for local support, which may include an Association Visitor (AV), a local branch or group or a regional care development adviser (RCDA)
  • information about how the MND Association can support you
  • signposting to other appropriate services

A comprehensive range of publications are also available for people affected by the disease, for professionals involved in their care and for those involved in research.

As a professional nurse, it is very reassuring that I can ask for help and information, as motor neurone disease is not common. I need to be sure I am doing everything in my power to offer the best care for my client. You give a fantastic service. Thank you, it makes my job much easier.

Our team

The MND Connect team consists of a team of experienced staff and volunteers who work closely with our local and regional services.

Our team members have backgrounds in occupational therapy, speech and language therapy, nursing, midwifery, education and carers' services. Together we offer 40 years' experience in providing specific MND support.

Our professional and friendly MND Connect team have been continuously accredited with the Helplines Partnership Standard since 2015, reassuring MND Connect helpline callers that they will receive reliable, accurate and timely information and support.

The commitment to delivering an effective, high-quality service was strongly evident Helpline Standards assessor

Emergency and out of hours contact options

If you have a medical emergency or need urgent medical advice, please contact your GP, NHS 111 or the emergency services 999.

If your call is not of an urgent nature, please leave your name and telephone number and we will return your call when MND Connect are open again.  We will only leave a message on your answer machine if you give us permission to do so.

You may also want to consider our online care forum.

Alternatively, if you need to speak to someone straight away, you may wish to call the Samaritans. The number for the Samaritans is 116 123 (no area code required).

Helplines Standard logo

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262