15 October 2025 Working with MND

Meet Lorraine...

Lorraine, a service manager in South London, was diagnosed with MND in May 2024. Here, she discusses sharing the news with her children, her determination in the face of MND and the support she receives from her employer and family. She shares the significance of her faith and emphasises the importance of staying positive, living life fully and planning for end-of-life care. 

Eugene with his wife, Nicola, and their children
Living with MND

Eugene

15 October 2025
Eugene lives in Chelmsford with his wife Nicola and their two children. Before his MND diagnosis, Eugene had a very active life, and the family spent five years living in Hong Kong for Eugene’s work.
Chaudhry family photo
Communication aids

Tahira and Amna

15 October 2025
Tahira was diagnosed with MND in 2020 after having symptoms for 18 months. She emphasises the importance of focusing on the person rather than the illness and Amna reflects on her mother's strength.
Patrick sitting outside - autumnal trees in the background
Living with MND

Patrick

13 October 2025
Patrick was diagnosed with PLS in December 2023 after experiencing symptoms in April 2022. Life with MND looks different now, but he still maintains his passion for music.