Research news
News

MND Association acts on tofersen decision

21 March 2024
Tofersen is a proven, effective treatment. Clinical trials have shown it slows progression of MND in people who have the SOD1 gene alteration.
Sam Perkins lab visit
News

New research partnership to support the search for MND treatments

19 March 2024
Researchers at the University of Nottingham are joining forces with Stand Against MND, the charity co-founded by Sam Perkins who has MND, and the MND Association, to carry out research
Research news
News

Statement in response to NICE decision regarding tofersen

13 March 2024
Last week we heard the disappointing news that NICE has confirmed its decision to appraise the drug tofersen through the Single Technology Appraisal (STA) route
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