Support MND carers by signing our open letter

Support MND Carers

Caring for a loved one with MND can take a physical and emotional toll, with some carers already struggling to cope and receiving very little support. Life is often hard for MND carers physically, financially, and emotionally, and during the COVID-19 pandemic, the situation is much worse.

People with MND are among some of the most vulnerable to COVID-19, and as the lockdown eases, unpaid MND carers will continue to provide a vital but often invisible frontline role to ensure those they care for continue to remain safe while wider society slowly begins to enjoy increased freedoms again. On top of undertaking extra care and support to their loved ones with little respite or support during this time, carers will be tackling other challenges such as managing their own underlying health conditions, coping with financial worries due to higher food costs and household bills, their children returning to school and managing their own paid work commitments.

We are extremely concerned that unpaid MND carers are under immense pressure to provide more care with no breaks and very little support.   That’s why we are calling on the UK Government, the Welsh Government, and the Northern Ireland Executive to act now to relieve some of the immediate pressures being faced by our carers. We want to see improved access to testing and PPE, increase in Carers Allowance, and clear guidance that helps protect unpaid carers and those they care for as lockdown restrictions begin to be lifted.

Please join our urgent call to #supportMNDcarers through the COVID-19 crisis by signing our open letter and share your experiences of caring for your loved ones with MND.

The open letter and your experiences will be delivered virtually during Carers Week (8-14 June) to the Minister of State for Care Helen Whately MP, Deputy Minister for Health and Social Services in Wales Julie Morgan MS, and Northern Ireland’s Minister of Health Robin Swann MLA.

Together we can make sure MND carers get the support they urgently need.

Sign the letter

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262