Welcome to MND Views, our video hub about treatment and care with motor neurone disease (MND) or Kennedy’s disease.
This video hub features people who have been diagnosed, along with carers and partners. Their thoughts about the support they need and receive may help you feel more informed. This can be of benefit when seeking health and social care support or when making decisions. Our thanks to everyone who has kindly taken part. Find out more about this project at About MND Views.
The interview clips are available by person or by topic. Read more on topics by searching with our Care information finder, or contact our MND Connect helpline for support.
David
David is living with MND and aged 50. He was diagnosed in 2025 and talks about his care team and learning to adapt to life with MND.
Tracy and Iain
Tracy is living with MND and her husband Iain is her main carer. They talk openly about their challenges with social care, communicating with eye gaze and voice banking.
Meena
Meena, aged 47, is the main carer for her father who is living with MND. He was diagnosed in 2018. Meena talks about her care experience from a cultural point of view.
Colin and Georgina
Colin is living with Kennedy’s disease and aged 72. His wife Georgina is his main carer. Colin self diagnosed in 1998 as he was already aware of Kennedy’s disease being in the family.
Sue
Sue is living with MND and aged 70. She was diagnosed in 2022 and talks about her experience living alone and the impact this has on managing her care.
Ian and Deanne
Ian is living with MND and aged 70. He was diagnosed in 2024 and his wife Deanne is his main carer. They talk openly about the impact of MND as individuals and as a couple.
Page last updated: March 2026
Next full review: March 2027