Volunteer newsletter

2025

*** LATEST ISSUE *** 19 December - Join our Volunteer Forum, volunteers at the Telegraph Christmas Charity Appeal, making memories for young people affected by MND, invitation to our brand webinar

5 December - Invitation to our brand webinar, Unlock The Door housing campaign, Winter appeal

21 November - Rob Burrow Professorship, Join #TeamMND this January, MND Councillor Network

7 November - Our values, Trustees Week, Inspiring a new generation of scientists and our Winter Appeal

24 October - Telegraph Christmas Charity Appeal, Finance volunteers day, our Winter Appeal and the launch of our Story Hub

10 October - Making memories at London Zoo, Onboarding day for new health and social care professionals, Facebook Challenges connect with fundraisers

26 September - Let's Talk recording, busking and cycling to raise funds, book tickets for our Christmas concert

12 September - Rob Burrow Early Career Researcher (ECR) Prize, MND Matters podcast, sign up for volunteer events and Lincolnshire's Walk to d'feet

29 August - Involvement lead, Celebrating 10 years of our Non-Clinical Fellowships, volunteer forum and Invite your local MP to meet with us this autumn

15 August - Sign up to out volunteer events in autumn, share Seckin's powerful message on tofersen Your Impact summer 2025

1 August - Research Nurse Network, East Surrey Branch's 40th anniversary, World Record Attempt and EnCouRage UK 2025

20 July - Omaze UK, welcoming our new trustees, Ice sculpture (Prescribe Life campaign)

4 July - Longitude Prize, investing in research, Global MND Awareness Day events, Pride in West London

20 June - Global MND Awareness Day, Carers Week, volunteer recognition and our volunteering support

6 June - Volunteers' Week special, recognising the incredible work volunteers do in local communities

23 May - Omaze partnership, Liverpool Regional Roadshow, Longitude Prize Survey, and Cardiff and Vale's Walk to D'feet

9 May - Leadership Forum, sign our tofersen petition, Campaign Conversations and Marathon runners unite to raise over £500,000

25 April - Our Impact Goals, 'Bare Legs Brian' gets on his bike, Voices of MND community take centre stage, and Featherbed Tales

11 April - MND EnCouRage 2025, MPs and MND community talk MND research, and highlighting the rising costs of living

28 March - Annual transfer survey, join us for a Campaign Conversation, swim 6km in May and register for our roadshows

14 March - Regional Roadshows registration, Kilimanjaro trek, 'Meet the researchers' legacy event and our March appeal

28 February - Support groups, South East Wales Branch, share our survey on DFGs, and could you be our next Campaigns Volunteer?

14 February - Let's Talk recording, celebrating our Chiltern Branch volunteer Cyndy, Celebrating Women and Girls in Science and our survey on Disabled Facilities Grants

31 January - Have your say about our volunteering communications, Move for 30 Minutes a Day in March, a look back at our campaigns work in 2024 and sign up for our 'Working Well Together' workshop

17 January - Strengthening our research focus, Cost of Living Support Fund, care information resources and help shape the work of the APPG on MND in 2025

2024

20 December - Supporting the community, Nigel's snooker success, and the stars shine for our Christmas Concert

6 December - Kev's Challenge, invitation to our next Let's Talk online event, and increasing awareness through the APPG on MND

22 November - tofersen campaign win, brand review, volunteer engagement day and safeguarding webinars

8 November - Trustees' Week, Let's Talk recording, Cost of Living Support Fund increase and a Pride of Reading award for one of our volunteers

25 October - My MND, My Needs, Surrey branches raise money with Wheels and Walkies, and support our Prescribe Life campaign

11 October - BBC Lifeline Appeal, South Wales volunteers meet-up, safeguarding webinars and two months until our International Symposium

27 September - featuring a lifetime achievement award for volunteer Janet Oliver, recognition for The Love Inside, and an invitation for local MPs to support the MND community in Parliament

13 September - featuring news of our letter on the Winter Fuel Payment, #TeamMND at the Great North Run, and an invite to our Meet the directors webinar in October

30 August - featuring the launch of our Volunteers Facebook Group, advice on how to raise awareness in your local media, and a look ahead to our September Cure Finders appeal

16 August - featuring news of our Back to Basics research blog series, a look back at the Ice Bucket Challenge ten years on, and opportunities to have your say in our working groups

2 August - featuring more of your Walk to D'feet events, a skydiving golfer, and a review of our grant application forms

19 July - featuring our Countdown to a cure report, a look back at EnCouRage UK and your Walk to D'feet events

5 July - featuring Global MND Awareness Day, The Big MND BBQ and Pride in West London

7 June - Volunteers' Week Special, your volunteering impact, our latest statement on tofersen, and our June appeal

24 May - featuring a look back at our recent Roadshow events, Coronation Street Wellbeing Day, and a conversation with Joe Linsky, Social Media Officer for the South Yorkshire Branch

10 May - featuring news of positive results from a study on a form of psychological therapy, an update on our care information resources, and a podcast win for our patron Rob Burrow

26 April - featuring news of a special visit from our Royal Patron HRH The Princess Royal to our Northern Ireland Roadshow, plus the launch of our Summer Raffle

12 April - including news of some fantastic fundraising efforts from our branches, plus a chat with the people behind a new support group for the Rugby and Coventry area

28 March - featuring news of an exciting research partnership with the University of Nottingham and a chance to nominate your volunteering heroes

15 March - including a conversation with Gil Boyd, co-host of our online Veterans Support Group

1 March - including information on our safety and wellbeing support and our thanks to MND Connect Helpline volunteers

16 February - including the launch of our regional roadshows and research nurses network

2 February - including Tanya Curry's recent branch visit in Reading and an award nomination for the Colchester Group

19 January - TV ad campaign launch and My MND, My Needs survey

5 January - including TakeOverMND and Let'sTalk recording

2023

2022

23 December - Volunteer News - Christmas Edition and Sally Light's farewell message

9 December - Volunteer News

25 November - Volunteer News

11 November - Trustees' Week Special

28 October - Volunteer News

14 October - Volunteer News

30 September - Volunteer News

16 September - Volunteer News

9 September - Urgent update about The Queen - *Volunteer News paused*

26 August - Volunteer News

12 August - Volunteer News

29 July - Volunteer News

15 July - Volunteer News

1 July - Volunteer News

17 June - Volunteer News

1 June - Volunteers Week Special Edition!

20 May - Volunteer News

6 May - Volunteer News

22 April - Volunteer News

8 April - Volunteer News

25 March - Volunteer News

11 March - International Women's Day Special Edition!

25 February - Volunteer News

11 February - Volunteer News

28 January - Volunteer News

Volunteer newsletter

Welcome to the ‘News’ section of the Volunteer Zone.

Look through the latest and back issues of your volunteer newsletter.

2025

2024

2023

2022